I want to create this discussion that we can always go back to and analyze to understand some reasons for having Alopecia Universalis and possible helpful treatments

1- do you have AU?
2- when was the first ever onset of spots i.e at what age?
3- why do you think you developed it (hereditary, stress, hormones)?
4- do you have other autoimmune diseases?
5- any advice for treatments? Did your hair come back?

I am looking forward for your replies. I know many people are not active on this site anymore
But the more we can collect answers the better.

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1 - Have AU

2 - First patch was when I was five (grew back within a couple months), but then never again until I was 28 

3 - Doctor noticed a correlation with low iron levels when I was 5, upped my iron and my hair grew back within a couple months.

 When I developed AU at 28 my iron had also dipped very low (even though there was no decrease in hemoglobin levels: not anemic), but it also developed after a long term of living in a bad-bad landlord environment, three months getting engaged and having a friend pass away shortly after that.  The time between discovering my first patch at 28 to losing all my hair was about 5 months. 

4 - No other autoimmune disease, though I do suffer something called geographic tongue periodically, which has been linked to immune related stresses

5 - I did the injections when I still had some hair left, but didn't expect a change - by the time a dermatologist could see me, the AA had spread pretty rapidly and expansively.  It left me with scalp atrophy for about 4 months, in the places they injected.  Mostly working on getting healthier through exercise and diet.

No real advice, getting my eyebrows micro-bladed was a huge increase in self-confidence. No more fear of wiping them off accidentally in public.  

Thank you so much!! Was your patch noticable at 5? Or maybe just tiny spot.
Btw congratulations in your wedding!

1. Yes

2. AA began at age 39 or 40.  AU happened at age 57.

3. I blame stress.

4. Yes:  Eczema

5. My dermatologist said it doesn't effect white hair. Over the past 6 months I've had a lot of white hair growing on my head, but large areas are missing. As I age more, I'm hoping more white hair will fill in :-).

Hair inside my nose grew back.

My eyelashes are growing a bit though they are basically invisible.

Two interesting studies from the National Institutes of Health (USA Government organization in charge of clinical health trials and much more. "The National Institutes of Health [NIH], a part of the U.S. Department of Health and Human Services, is the nation’s medical research agency — making important discoveries that improve health and save lives.")

1.  Peppermint Oil Promotes Hair Growth without Toxic Signs  I'm following their procedure (what was used on mice!) and that's when the white hairs really started to grow. Connection?

2.  Lisinopril-Induced Alopecia: A Case Report.   June 2016. Lisinopril is my blood pressure med. My dose was increased from 30 to 40 mg just 3 months before my hair fell out (the AU event). So I'm exercising more and am down to 7.5 mg per day. Maybe that has helped with the white hair growth? From the end of the Abstract, "Clinicians should be aware of the possibility that lisinopril may be an offending agent in a patient with unexplained alopecia."

Thank you so so much vety helpfull...i didnt know whote hairs dont get affected! Wish i had white hair then!!!
Hi Blondie..just wonderinh how bad was your first AA onset? And how was it between age 40 to 57?

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