Hello guys and gals

was diagnosed in March...and now probably about 3 and a bit months after I first noticed my first patch, I have white fuzz in the 3 spots that started early on....is this a good sign that I may recover from this bout? I have no illusions that I may have more episodes, but I just wondered if this bodes well for this episode? Over about 3 wks from diagnosis, I developed a few patches of broken hairs, now the main 3 seem to be growing back, and the other areas which were just tiny patches of broken hairs are malting a little bit....I kinda know where they are because I coloured my hair before I was diagnosed so most of my hair has dark roots about and inch and a bit long, but the areas around the broken hairs have a light root of about 3mms, so I am taking it that they stopped growing a while ago and are only now falling out....is this how it has happened for others? I am looking on the positive side that I seem to have regrowth quite early on...but even though I knew these other patches were going to enlarge, and none of them are new as the hairs stopped growing when the other patches appeared, it still leaves me on a bit of a downer and makes me rethink my positivity.....

Does anyone have any input on this? Any advice from experience?

Thanks

Tracey

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Hi Tracey! I was diagnosed back in October. When I first had regrowth, it was very fine, with no color to it. (The white fuzz) Almost invisible to see. Even after coloring my hair, it did not take the color, but eventually turned to my natural hair color in just a while. Hope this helps you some. I know that every person's experience is unique in itself, so there are no definite answers for you. Alopecia is unpredictable and varies with each person. AKA: The Rollercoaster!
Thanks for your response Diana....I hope mine takes the same path as yours did! Did you lose much hair? x
My understanding is that the hair falls out 3 months from the start of the stress if that is what may be the cause. That seems to be how it works for me. I try everything I can do to help the hair along.
Lots of foods with protein and iron since I was very iron deficient. I also use Clobetasol and receive injections to the balding spots. I also use 2% minoxidil. I take biotin as well. I do take my regular vitamins etc daily.

Good luck
EU
Hi there
I've had alopecia for 15years now & my patches come & go, sometimes they grow back blonde n fluffy other times my normal dark brown! I personally can't see any trends in the times of growth n loss, I'm curious to see other peoples responses! Good luck n best wishes! :)
Hi, I have experienced alopecia in spots four times in my life. Once, after mono, at the age of 16, and then after the birth of my second child. After my aunt died, I had it again---4ths after similar to what Edie said. Now, two years after that experience, I have it again after a terrible stressful ordeal. As we speak, I am struggling with the frontal alopecia spot emotionally because I have to look at it every time I see a mirror. I will say that I noticed on my own hair that it grows in fluffy first, then changes color to what you would normally think as "my color". I am 47. This doesn't help the problem because a year ago I entered active periomenopause. At this time, I am using the steroid shots, Nioxin, and biotin. This started in March, so I am about 3mths, or two treatments into the process. I definitely think that stress is the trigger for me, along with some unknown factor. The best thing I have tried so far is to give it time. This is not easy, and I am a type A personality. Good luck to you, I, too, am curious about all of your results. Thanks for posting.
Thanks to all of you for your responses, I am encouraged by how you Jackie have had regrowth on the other occasions it has happened, as I still sometimes find myself worrying about losing it all lol, although I know the most common form is spots....My fluff is still here and I have noticed the back patch of white fluff is spreading over the rest of the spot....I am due to see a dermatologist in one week, I wonder if he will give me the shots in the patches which has already started to regrow on their own?xx
Oh and also....I think my hair dye may have been an "environmental" trigger possibly...as I don't colour my hair, but on the one occasion I did...this happened!x
I stopped highlights. I thought this did it the first time too. The spots occurred directly where I highlighted. Maybe a coincidence, yet, I decided grays are better than none at all!! Some people are very sensitive to chemicals.
Hi Tracey, I just went in May. My mistake was to allow the derm's associate to give the shots in the areas that she felt needed them. Now I have a frontal spot that is bigger. My derm gave me shots there, and she (the associate" said, "no, that's your face". It is not on my face, it was on my hairline! She seems reticent to pursue it. I let it go, and then realized that I it got worse. i know some folks don't want to be aggressive in treatment, but I really feel that if he gave the shots on the hairline, she should have followed suit. I think that you can point out that it needs the "signal" to calm the area down, and allow regrowth. I know for me, I plan on being more assertive. It now looks like a horseshoe on my frontal right side part. It wasn't that way in March. Of course, every patient is different. I am speaking of my own experience. I have moderate loss in three areas. Stress is an amazing trigger! Good luck to you!!! Keep us posted on your appointment and the results. I think that this site helps so many people.
Thanks for your experiences there Jackie....I am hoping that I will get injections in all my spots, but as three of them (the main ones) have regrowth in them I am unsure of what they will do....as hair can obviously grow there at the mo. I will try and take your advice and be stern....and thanks for your comment on the hair dye....when I coloured my hair I used peroxide and a dye so I wonder if its the peroxide that I maybe sensitive to...who knows but I wont be risking it again xxx
My exclamation mark hairs are 100% different to what I have classed as regrowth, the blond fuzzy hair is that which is there now, which was not there before and is nowhere near the edges of the patch...The patch started bald as a baby's bum with exclamation mark hairs around the edges, they spread as did the patch, now I still have a few exclamation hairs on one edge of the patch but baby fluffy hair inside the patch....I am sorry that your story did not turn out brilliantly, but there again it sounds like you had long periods of time with regrowth between bouts....maybe we are the start of this evolution eh, that would be good, then we wouldn't have to bother about disguising or questioning any of this....
My first bout with AA was 2 years ago, and the injections helped, and fine fuzzy white hair came back in quickly. I was under some stress then, mostly menopause at 50. Took 3 rounds of injections, and the spots could be covered with my hair I still had, so not too bad. Then about 2 months ago, it came back and hit all the rest of the head it didn't get before at age 52, and not under any stress at all, so go figure....LOL I told the dermatologist that I thought the stress theory was true 2 years ago, but now I have no stress to cause any Alopecia, only the Alopecia trying to cause me stress. Better than having one of the other auto immune diseases that can make you suffer for years! Going for the 2nd round of injections Friday, and taking the Low Dose Naltrexone "LDN" that was recently prescribed to me to stop the hair from falling out, which appears to be working as the hair stopped falling out after a week on the Rx. Now, the only way to tell it is doing the job is if the spots never return, so only time will tell. The Dr is also good at determining if my auto immune system is at a low or high, so will see him next week.

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