Stopped Xeljanz and hairs are falling again. Need help

Hey guys! I cured my AU with generic Xeljanz in a short span and I was fine for few months. Later I started lowering my dosage and now my hairs are falling and I have huge patches. This is really heartbreaking to me. I'm losing confidence to face people again. Please help me. I'm currently on 20mg a day. Do you guys have experienced the same?

Views: 1739

▶ Reply to This

Replies to This Discussion

Permalink Reply by Too GQ For You on March 26, 2022 at 11:53am

Day 1 (February 4th) vs Now (March 21st)

Permalink Reply by Danielle36 on March 28, 2022 at 11:37pm
Hey everyone - I’ve been following the development of this clinic trial that leverages a stem cell educator device, which enable the immune system to reset itself and our bodies wouldn't attack our hair or be reliant on drugs to suppress our immune systems. There is a clinical trial approved by the FDA that is set to begin given adequate funding is provided, and the trial needs the support of the Alopecia community to continue to move forward. 
Stem cells hold such significant capabilities in healing our bodies and Throne Biotechnologies wants to help people with Alopecia. Phase 2 of this clinical trial and commercialization would be a huge advancement in a sustainable treatment method. Check it out here: https://www.startengine.com/throne-biotechnologies
Company website: https://thronebio.com
Permalink Reply by jennifer on May 5, 2022 at 1:49pm

This is wonderful technology!  Thank you for posting.  How did you get involved in the trial and do you know if they are taking research participants?

Permalink Reply by Too GQ For You on May 5, 2022 at 2:03pm

Hey Jenn! Thanks & its a 2 year trial 2 pills a day with no side effects since I started.

Here is 3 month update.

They always have trials on naaf.org, but I would shoot for ctp-543. 

Permalink Reply by jennifer on May 5, 2022 at 2:24pm

Oh that's the deuroxolitinib trial.  I'm familiar with that.  I think that's phase 3 safety trial right? Hopefully an FDA approved med may be available by next year.  Great to see your success!

Permalink Reply by Too GQ For You on May 5, 2022 at 2:35pm

yes & I hope so too

thanks again

Permalink Reply by mastros on May 7, 2022 at 4:24am

awesome :-) really happy it works for you

Permalink Reply by Joja101 on May 5, 2022 at 12:46pm

I’m in a similar position. Got lazy taking my 11mg from Beacon a day. Started shedding very aggressively. Any advise on how to stop the shed and if it’s possible to stabilize. It’s been 3 weeks where I’m shedding bad. I’ve upped my dose to 2 pills a day but nothing it slowing down 

RSS

Disclaimer

Any mention of products and services on Alopecia World is for informational purposes only; it does not imply a recommendation or endorsement by Alopecia World. Nor should any statement or representation on this site be construed as professional, medical or expert advice, or as pre-screened or endorsed by Alopecia World. Alopecia World is not responsible or liable for any of the views, opinions or conduct, online or offline, of any user or member of Alopecia World.

© 2024   Created by Alopecia World.   Powered by

Badges  |  Report an Issue  |  Terms of Service