Alopecia World
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The people around with alopecia
Since the onset of my AA, I've often found myself staring at people's hair way more than I used to... And i've noticed, to my surprise, that alopecia is not uncommon at all. I see people with this condition several times a week, in my not-so-big town.
Yesterday for example, I saw this young man, sporting several bare patches at the back of his head, walking his dog without a care in the world - or so it seemed. I thought he looked quite cool, very relaxed, had a nice dress sense, and the patches were adding something edgy to his look.
A couple of days before, there was this guy who seemed to have AU, walking confidently in the streets, in shorts, bare-headed...
And then there was this girl with henna tattoos on her bare scalp - very striking, in the good sense of the word (maybe she didn't have alopecia at all, but still).
All in all, I think right now I'm at a stage of acceptance where I need references and people to get inspired from before making my own way through it. It certainly feels better to see other people with this (even though that's not something I wish for anyone!)... I'm slowly becoming more confident with this condition, and to stop hiding it could maybe help someone I walk by in the streets, who knows.
Anyone can relate to this ?
Cheers !
Replies to This Discussion
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Permalink Reply by Jen on
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I love that! what a great t-shirt idea. You should set up a shop on CafePress and market that slogan for us! "Don't stare, it's only hair" love it!
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I wish I could get to your level of acceptance. I have been struggling for years now, on and off and the past 6 months it has really gotten bad. I am finding new dime sized spots almost weekly, and the other spots continue to spread and get larger. I am at my wits end with this disease and need to come to some sort of acceptance but it is so hard, being a woman and all.
I miss being able to do whatever I wanted with my hairs. Pull it up, half up, bunch it, scrunch it, braid it, etc. But now I can't do anything but wear it down long because the entire back of my neck and up is gone, looks like I shaved up the back of my head. Then I have spots on either side of my head and even starting to recede by the side of my face.
I have had the injections, used foam, used cream, used rogaine, used emu oil and coconut oil...I had my blood levels checked and to my surprise, no thyroid issue however i do have a low iron count. Still waiting to hear from my doctor about what to do with that in relation to my hair.
So while it is a horrible and embarrassing condition, you are right, there are so many of us out there who are dealing with it and i need to find the same inspiration to come to an acceptance. It just hasn't happened yet :-(
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Permalink Reply by Susan on
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Am I awful or what? I was fine without hair. My hair has grown somewhat back. I felt bad at first without hair but then I was perfectly fine without hair. Am I weird? People did stare at me and it did feel funny but then I got over it. As I asked before....am I awful/weird about this hair thing?
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Hello there. My hair hair has grown back somewhat. Actually I loved it when I was bald. What did you think about your hair or lack of hair?
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Permalink Reply by Alma A. on
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I'm going through hair loss again in a few yrs, the first time I was lost, mad sad, there were a few times that I did accept it and didn't cover up. There were several friends nd family that encouraged me not to hide it. Some people coveting it up is to give it power over me. It grew back so I thought it was over. But now its happen again I don't know what to feel or how to deal with it. But the one thing that does make me happy is when my son says mom I love you and you're pretty with or without hair.
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I can relate to this. I live in a small town. But there are several of us with alopecia. We don't talk about it, but it is just comforting to know someone who also has this.
I have also started noticing eyelashes and eyebrows as a clue when I am in larger towns. It is surprising how I can spot a wig, even a human hair wig! I never say anything, but I would like too at some point!
I wear a wig all the time when I am out, but the eyelashes give me away...
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For my alopecia areata problem, i have tried Arganlife Products I would recommend Arganlife Products to anyone who suffers from alopecia areata. Arganlife is the only one which contains no sulphate ,alcohol and dye. I am thankful to developers of the product for such a great treatment. I saw this products from youtube www.youtube.com/watch?v=CJUrQ4eEFPU
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Permalink Reply by Lisa Santer on
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I can totally relate to this. At times, I've deeply enjoyed looking at photos of people who are bald like me. I relish the changing slideshow on this site's homepage. I think everyone wants to look around and see others who are like them. That is one reason I stopped trying to hide my baldness. I surely would have loved to see a bald woman when I was a teen going bald.
While you're out looking at the bald and bare folks, you might also want to check out how others react to them. I'll bet they get far less (and shorter) staring and comments than you've imagined.
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