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Xeljanz for alopecians
Wondering what everyone thinks about the story on FOX and Friends today- in case you missed it, an 8 year suffer of Alopecia Totalis - regrew all of his hair in 3 months going on the arthritis drug Xeljanz. Wondering if anyone has tried this and what others think about this.
Replies to This Discussion
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Permalink Reply by KimF4L on
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These drugs are VERY serious and people should be VERY cautious. I developed AU in May 2011 because of a combination of drugs to treat the autoimmune disease Crohns which I developed in late 2007. The drug Remicade along with 6MP, Lialda and others gave me AU and brain lesions. I am now stuck on Methotrexate which is another horrible drug that if I used tofacitinib citrate while taking it or even if I was off it it could lead to SEVERE reactions or even death. PLEASE be careful with these drugs I desperately want my hair back too but I also want to live.
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Permalink Reply by patty from NJ on
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It is encouraging! So far, one patient used it at Yale for psoriasis (and AU). He had no side effects. Everyone is different. Clinical trials are ongoing and then they will have more information, including effectiveness and side effects. Maybe there will be a topical form of this medicine that will help. Since it is already FDA approved for rheumatoid arthritis, at least it may be fast tracked to treat AA/AT/AU 'off label' if it is found to be effective and with few side effects. Let's pray.
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That looks good...i really hope that more research is done and we could all benefit from this drug under close doctor supervision...that being said as a AU male i have become used to my bald head, and i also quite enjoy putting on my faint eyebrows with a eyebrow pencil and shadow powder..the only thing that really bothers me now is the eyelashes as i am constantly getting stuff in my eyes when riding my bike..but anyway good to hear about this :)
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Permalink Reply by Tricia on
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They've been discussing it here since Thursday. http://www.alopeciaworld.com/forum/topics/did-anyone-catch-this-tof...
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I submitted my dna for research in February to the MD Anderson cancer facility that also deals with alopecia. I had strep throat a LOT when I was a kid and scarlet fever. One time when I was a young teenager I passed out several times in one day because I hadnt eaten enough and got overheated (I was a tiny thing and we live in Texas). Anyway, they did an ekg on me and found that I have a misshapen valve in my heart. This can occur because of rheumatoid fever, I found out on Saturday. The doctor that I submitted my research to is the one the doctor from Yale cited as his inspiration to try this based on her research. Well, I submitted it to Dr. Duvic first in Houston who shipped it off to columbia to dr. Christiano for analysis following that. I have emailed both my local doc and md Anderson to see whether or not I could be considered for trials since they said id be in line for submitting my dna when they expand to houston anyway. Point is...i highly recommend submitti g your DNA! Yeah, they take five giant vials of blood and do a needle biopsy to compare your alopecia traits against other diseases, but I feel like I am contributing to solutions, and I encourage anyone to join in because this discovery has completely reaffirmed my belief that taking initiative works, and that even though it's nothing in stone that miracles at least POSSIBLY exist. Good luck everyone. May everyone grow their hair back and look back at this like the chapter that made us grow as people. ♡
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Interesting twist!
good luck to you &- thanks, I look forward to looking back on this chapter a lot wiser and stronger AND with a huge sigh of relief! ;)
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Me too! As an update, my very by the book dermatologist would not even consider seeing me to discuss this treatment and I am pretty pissed since I have family history of arthritis anyway. If anyone on this thread has a good progressive derm in Dallas I would be very grateful for your information. Particularly if u get one that is open to prescribing Xeljanz!!!
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I'm 4 months in- it's working a little bit- but seemed to plateau around the 3 month mark. I've recently switched from 10mg-15mg a day- which is improving things slightly. I had full AU for the past 5 years, so maybe it would take longer for me. I'd love to know if anyone has had success with this drug where it kicked in a bit later? I'm going to try one more month and maybe switch over to ruxolitinib... Please let me know if anyone else has tried it and had delayed results- thanks!
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Permalink Reply by AlopeciaDestroyedMyLife on
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how much velus are you getting?
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My whole head, eyebrows, eyelashes, beard and chest hair. Some hair in my face and chest have pigment... So it's positive and the only things that's given me any type of results- it's just very slow right now- not much improvement since the first month...
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I am in a similar position.
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