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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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Replies to This Discussion
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Permalink Reply by Rach1992 on
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As a lady, I find my semi permanent tattooed brows and eyeliner covers that. I miss my long, brunette, curly hair, though!!
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Permalink Reply by Xeljanzmiracle on
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Ujjain, make sure and take the correct doseage of Xeljanz, which is 2 per day starting out. Take one in the morning and one in the evening. Hopefully, you will have regrowth in a month or so. Look for tiny, fine, white blondish hairs. The hair will get darker and longer in time. We are all rooting for you and wish you the best. Let us know when you see your first peachfuzz. After having ABSOLUTELY NO HAIR on my body for 6 years, September 1, 2015 when I saw my first scalp hair, was one of the most exciting days of my life!
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Permalink Reply by Aurora Sophie on
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Hi.
I am going to Turkey tomorrow morning, should I give my daughet to pills every day from day 1?
Ang dr King wrote to us yesterday :-) So 20 mars we are goring to U.S :-)
Then maybe we can try your advice about the co-pay card :-) and since Turkey can not make the cream, the T topicical cream :-) and he explained in the mail why, maybe we get this also.
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That's WONDERFUL Aurora! Give your daughter 2 pills a day, one in the morning and one in the evening
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thanks.
She has taken the first pill now:-)
She is exited:-)
I mars we are going to U.S to see dr King.
We paid 10 635 Turkish lire for 6 packets with 56 pills at Rebul 1895 pharmacy.
And they gave us three nice parfumes free :-)
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By the time you guys see Dr. King next month your daughter might have hair already! But it's good that you're having her monitored and especially great that you are having her monitored by the expert!
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Permalink Reply by Toxicmosquitoaf on
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I totally agree
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Hey Fly, what is your background? Were you born in Slovenia? Have you ever been to the U.S.? Are you going to be able to come over to get the $12,000 worth of free Xeljanz?
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Born and raised in Slovenia. I dont think I will be able to, because at home they don't support me with this decision so they are not willing to help me with the money. So when I get older and I get a job I will come. I will just have to wait I guess
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Hi!
I told my neighbor about you, and she told me that you should check, gofundme:
she said quite easy to get someone to sponsor different difficulties, as illness, lack of money to necessaries, maybe you can try present your situation there.
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Hi.
First I found what you wrote, why is it not there any more?
it was only there a short time, why?
It was nice what you wrote, maybe if you know someone in those countries they can help you with a bank account ? I can ask someone I know in Germany if you want.
I am from Norway, and we are not in EU, so we also have our own currency, therefore I can not help you, but I think my family in Germany can.
I know how traumatic alopecia is.
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