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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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AW: Other discussions on Xeljanz / Tofacitinib
https://alopeciaworld.com/main/search/search?q=Tofacitinib
Replies to This Discussion
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Permalink Reply by Xeljanzmiracle on
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Also Kevin, I do not appreciate your coarse, rude language or your false accusations about me. If you don't want to take Xeljanz, no one is forcing you to. This thread is to support and encourage Xeljanz users and those interested in trying it or who have questions about it.
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Permalink Reply by Joao Piva on
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Yes my friend, you should really say that you are sorry. Go to China and keep your mouth shut. I hope the best for your treatment. Why there are so many people playing with the Xeljanz theme here? Come on, stop doing that!! If a person wants to get this medication there was a lot of reading and specialist consulting... a lot of guts to start the treatment. Laugh about? Why? What is so funny bibby??? Tell me?
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Permalink Reply by Sp06 on
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Ive been looking around online and found that Vitamin D is extremely important in immune regulation. A huge huge percent of alopecia areata patients are deficient in vitamin D usually by a lot. I personally have my vitamin D levels around 30 which is pretty low.
One study tested the effects of a vitamin D based cream on an alopecia patient with very good results, the pictures are amazing.
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3412244/pdf/ad-24-341.pdf
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Calcipotriol ointment, which was used in the study, is generally used to treat psoriasis, which we all know is a related disease.
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Wow, 10 is really low, Im fairly certain that vitamin D plays a role in this. I hope more people post what their vitamin D levels are, it would help to see if this is the case for everyone.
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And many other studies claim a striking link between vitamin D deficiency and autoimmune diseases too.
So just out of curiosity, it would be interesting to see how many of you guys are vitamin D deficient.
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Permalink Reply by Lindzzej on
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Wow this is really interesting...I didn't know that, might have to start on some vit D just for good measure and I'm going to mention to my derm next week.
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Permalink Reply by Toxicmosquitoaf on
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Hmmm, I like your thinking...I think I am vitamin D deficient also. Because heres no sun in winter*
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