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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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AW: Other discussions on Xeljanz / Tofacitinib
https://alopeciaworld.com/main/search/search?q=Tofacitinib
Replies to This Discussion
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Permalink Reply by Blessing on
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Hi,
Thank you for sharing your experience and creating this forum. I have AU, RA and Lupus...oh the joy! My Doctor prescribed Xeljanz for my RA. Bonus, I have been on Xeljanz since December 18th. By March 26th I could feel hair growing in and on March 28th, I saw hundreds of hairs on my head. I have had AU for 33 years since age 12. The only thing that has worked previously was prednisone which destroyed my body. I can see other areas coming in and feel eyelashes. I will keep you posted on progress.
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I'm so glad to heard that from you . good job blessing
and how many pills you take Xeljanz ?
thanks
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I am on 2 pills...10mg per day. For less than 3 and a half months and the longevity of my AU, this is a miracle!
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Permalink Reply by Xeljanzmiracle on
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Blessing, wonderful! So happy for you. And I like blyour moniker (name). We are all blessed to have a drug that WORKS with little or minor side effects.
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Sister, lol! I'm female. That's a picture of me and my husband Wessley.
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That really gives me hope for my son who went full AU in a month at 11 1/2 years old. He is now turning 14. He had patchy eyebrows and some missing hair spots for the year or two prior to the AU condition. Thanks for sharing and continued success. God Bless.
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Thank you for sharing. I believe this is the one drug that has made a difference and will help your son.
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The Doctors have tried everything under the sun to treat me, many very painful. This is the first one where I am
Not have injections in my head and serious repercussions.
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33 YEARS without a single hair and now thousands to come! Blessing, where do you live? I would love to meet you and help you celebrate! PARTY!!! No more painful injections! XELJANZERS UNITE! We need to start planning our first annual Convention, lol! Who wants to come to California this summer? I'm serious.
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Why Blessing? Your growth proves he is wrong about Xeljanz being an effective treatment. He gets drunk and rants and raves trying to take our joy away. Don't give him that power.
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