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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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Replies to This Discussion
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Permalink Reply by macdev on
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Apoquel (oclacitinib) est un JAK inhibiteur spécifique JAK1 , utilisé dans les dermatites allergiques du chien...Je ne sais pas si il a été testé chez l homme ..Chez le chien , il est utilisé à la dose de 04.à 0.6 mg/ kg.. Il est très possible qu'à une dose supérieure , il soit inhibiteur de JAK 1 .2....
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Permalink Reply by Fab on
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ah enfin quelqu'un qui parle français ;)
un médicament pour chien.. je pense pas que ce soit nocif pour l'homme mais je me vois pas faire le cobaye
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Not a good idea to take dog meds.
My sister works at a vet clinic, got a cold or allergies, calculated her weight and prescribed herself a dog dosage of meds.
She ended up flat on the couch for hours.
Not safe.
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thank you for reply
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I am at my wits end I have been to see Dr. King without any luck. He did not do an examination of my scalp. He took a verbal health history and stated that he could not include me in his study. I reached out to him repeatedly in desperation in the year that followed with a reply that basically dismissed my concerns and plea for help and ended with "good luck." I have tried a nutritionist a herbalist etc. No help still bald. 14 years and counting. Where can I get this medication from besides D. King???????
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Where do you live? If you're near NY you can go to Dr. Lindsey Bordone she's accepting new patients and is a great doctor.
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Why didnt he accept having you?
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He said he had limited spacein his study did not accept me or my best friend
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Permalink Reply by Jcortez05 on
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DR bordone is such a nice dr so sweet only thing is that she is expensive ! She didn't accept my insurance so I paid cash for the 1st visit .. a few hundred $
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