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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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AW: Other discussions on Xeljanz / Tofacitinib
https://alopeciaworld.com/main/search/search?q=Tofacitinib
Replies to This Discussion
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Permalink Reply by LIU CHUNXIU on
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is any of you attend the apremilast trail? How is it going
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i do not have medical background. i knew apremilast is on trails for aa. i found 2 different trails for apremilast for vitiligo?one in us and the other is in france. does it mean the drug is promising for vitiligo?
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forget about Pfizer Canada. they really disappointed me. I really tried to get a copay but they don't give it for Canada.
now if u are in Canada and u need xeljanz pm me... I might have a good solution for you.
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people are saying "lot of new jak inhebitor are coming " but why dont they realise all pharma compnies doesnt give two shts about people and they will keep the price high to milk desparate people
hash oil treats cancer but pharma compnies tries their best to keep this a secret
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When there is a treatment it'll go either of two ways: People will get the treatment for free through the Pharmaceutical company due to inability to pay or lack of insurance coverage (a lot of people do this now for Xeljanz on this forum) , or their insurance will actually cover the medication because it will then have a label approved for AA.
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I have scoured several pages of the comments and while I have found several people trying Xeljanz for nearly a year, I seem to be finding very little about how they acquired it. Will it work for a receding hairline? How much does it cost? Is it prescribed for arthritis or hair or both? Would i see my dermatologist? How much does a supply cost?
I stared having my hair fall out in my 20s and my hairline receded significantly on my temples for several years before I tried using anything. When I began using Monoxidil 5% my hair almost immediately stopped falling out and with Monoxidil and a Lasercomb my hair has stayed and grown thick for a couple of years. I just want to get a full head of hair back.
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Xeljanz is a jak inhibitor which treats autoimmune hair loss not genetic male/female pattern baldness which 100% different.
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Permalink Reply by sadele on
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From my understanding xeljanz will not work for male pattern baldness. It's an immune suppressor so naturally it should help with Alopecia (which is an autoimmune disorder). You need to see your dermatologist in order to get diagnosed with Alopecia and THEN get a prescription of xeljanz from that dermatologist.
In order to obtain it through Pfizer, you need to go on their website and print out the hardship program application. Once that is in your hands, you take it back to your dermatologist and have him sign it. Then fax it in to Pfizer. It can take weeks for them to get back to you so call and be persistent.
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Aclaris are doing trials for a topical Jak inhibitor which treats androgenetic alopecia. Jak inhibitors are actually helpful for hereditary hairloss. Do some reading before you give people false information.
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Hi everyone! It's been a long time I have posted here. I was Au for almost 20 years. It's been 2 years since I started on Xeljanz and it's going well, no side effects besides colds here and there. I still have a couple of spots that need to fill and I've lost some hair the past few months probably due to a lot of stress. Started also taking Minoxidil a month ago. Hope it helps!
Eyebrows are good, but eyelashes don't seem to grow much, only a few. Attaching a pic of now. - Attachments:
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IMG_6861.JPG, 636 KB
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That's incredible after having AU for 20 years!! God bless you!
I'm actually in CT to see Dr King. I just flew in from a Seattle... my appt is tomorrow, Tuesday, at 9:30 then I head back to WA.
I'm starting from scratch (again) but have been praying that he has some news for me to share. I've been back on xeljanz, 20mg daily, for a month now... I have teeny tiny vellum hairs on my head. Nothing on my brows or lashes yet.
I'm hopeful!
Thank you for sharing!!
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