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Xeljanz (Tofacitinib Citrate): My experience on the trial
I have received a lot of interest from others on here in my involvement with the Xeljanz trials at Yale.
I thought it would be nice for everyone if I documented my progress on here.
Xeljanz is a Jak3 inhibitor and is believed to work with alopecia by turning off the distress signal relayed by the hair follicle to the attacking immune system which is the cause of the hairs falling out. Xeljanz comes in a strength of 5mg per pill and a full box contains 60 tablets. The recommended dosage for arthritis is 1 tablet in the morning and another in the evening each day.
The trial is set in a series of stages and there are requirements before participating. These include monthly visits and blood tests every 2 weeks. Dr Brett King is absolutely fantastic and is an inspiration to me. His positivity and enthusiasm gives me the much needed hope I have craved for over a decade. I have been put on a low dose to start with which is 1 tablet every other day. My dosage has now been increased to 1 tablet every day and next month it could be increased to 2 tablets per day depending on the results.
I have completed my first month and have already noticed my alopecia has stabilised . I have not lost any existing hairs. In addition to this I have seen little hairs growing in my chest area as well as eyebrows. Fingers crossed! To date, I have experienced no side effects.
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AW: Other discussions on Xeljanz / Tofacitinib
https://alopeciaworld.com/main/search/search?q=Tofacitinib
Replies to This Discussion
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Permalink Reply by kevin on
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Frida precisely I will tell my doctor to prescribe it I always had a good response to the steroid
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you will not teach me what I already know I had herpes in the mouth after two months I followed a treatment after 2 weeks I left, I did a lot of Acne research The herpes cholesterol increase is a common side effect. I have my blood test is all is good so if you are on xeljanz is that you are following you should know it. if this is not the case, refrain from giving bad information. thank you
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Yes Kevin, I understand it is a common side effect, if it is already in your bloodstream. All I am saying is that Xeljanz does not give you herpes but you are more likely to have a break out while taking it. I have found that cholesterol supplements really help lower the cholesterol. I went from 239 to 161, being the 239 before I started Xeljanz. In fact my blood is better than ever but I attribute that to all the supplements and good diet. That's great growth, and actually terminal hairs are the best to see! Thanks for posting your progress.
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Permalink Reply by Lindzzej on
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Hey Carlie, my cholesterol has been higher since I started Xeljanz, what cholesterol supplements are you taking to lower it?
Thanks!
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Nature Made, CholestOff,Complete Softgel w. Plant Sterols & Stanols 120 ctI bought it on Amazon.
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yes I hope in a year to have at least a good regrowth even if it is not complete but acceptable
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Permalink Reply by DJ88 on
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As of today have anyone gotten any really serious side effects from xeljanz on this forum?
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dj yes finally it could become serious it was at the level of the stomach because may have a perforation of the stomach it was people followed for the pr done your search on google you will find all type side effect xeljanz forum and look through you even . the best way to hang xeljanz is to be in good health and to pay attention to your diet and to be followed by a doctor as soon as I have an unusual thing I make an appointment dear my doctor
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Friends,9 months of treatment with dpcp, my hair turned out like this.I have been using 10 mg xeljanz for 7 months.Xeljanz has regrow some eyelash.My eyebrows start to grow thanks to the cortisone injections.But the hair coming out is not strong enough. I started to see the treatment of prp and mesotherapy. I use it in biotin supplement. What else can I do ?
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hello okan you have a good regrowth but it is necessary to be patient frida to add an oral steroid and its booster its regrowth and it took more than 1 years to have a complete regrowth, even the author of this page took two years and with steroids also look at the newsfeed of frida she marks all. look I posted pictures I arrive at 3 and a half months. I will also go to the steroid Frida said. did your beard and body hair grow back?
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