I was on 5mg of Xeljanz 2x a time for over a year, I reduced it to once a day in January. All was going well but a few weeks ago I began shedding a lot and I developed 3 new spots. I bumped my dosage back up to 5mg twice a day about a week ago.
I am really hoping this slows down the shedding ASAP, as my spots are continuing to grow and grow. Does anyone have any insight or experience with this?
We wish you all the best of luck and work together to overcome it!
Thanks so much for the vote of confidence! Do you mind telling me how long it took from when you bumped your dosage back up to when the shedding slowed down and the spots starting filling in again? Did it get worse before it got better?
It took weeks and weeks for the spots to appear, so I’m assuming it will take just as long for this shedding cycle to slow down with the increase of my dose.
Thanks again :)
I will estimate it took a good 2 months (8 weeks) from the time I was cutting my dosage until the time I noticed a relapse spot. My doctor said that is the expected time frame, as it takes a while from when the hair gets attacked until it actually falls out enough that you notice a spot. So, your timing seems consistent. I caught my situation pretty quickly before it spread and rushed to my dermatologist to get monthly Cortizone injections until things were growing back. Maybe talk to your doctor and see if that will slow the relapse down?
I will call him after the weekend and talk about getting some injections in the "spots". I saw him last week and he seemed to think that just going back to my original dosage would settle things down and create re-growth.
How long did it take for you to see re-growth in your relapsed areas?
I was suffering from Alopecia Areata from 3 years, now regrowth has started and I am getting my hairs back.
I was frustrated, tried every treatment in the past. Had more than 15 patches on all body, 1 big patch on my beard which covers almost half of the beard, 2 patches on chest, more than 10 patches on head. Now all patches are almost filled. Although I can still some hair fall on the floor.
I have written a blog with my experience with my images. I hope this will help others as well.
I would be happy to help in case of any questions.
How are you getting on ? How is your regrowth ?