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Alopecia Universalis

Join today to meet, support and share information with others who are also living with all loss of hair on their bodies.

Website: http://www.AlopeciaWorld.com
Members: 851
Latest Activity: Sep 24, 2023

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Stronger immune systems?

Started by Laura Adams. Last reply by Simahrya Apr 7, 2019. 43 Replies

Fingernails

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alopecia univeralisis

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Comment by Angie on February 7, 2013 at 3:07pm

If anyone knows of someone who lives in the DC or NoVA area and would like to join our alopecia group, please visit our Facebook page and request to join the group.

http://www.facebook.com/groups/canaaf/

Comment by SAMANTHA07 on October 20, 2012 at 11:44am

hi, i would likt to know, from your expierence the best wig manufuctures please,....i do not mind the price as long as it is comfortable with best hair. have bought a freedom wig but i am very disappointed

Comment by Alyce Jayne Martin on August 16, 2012 at 7:29pm

Hello Everyone.

If you are interested in seeing and trying on the gripper sport, or gripper cool, I will be in Washington, PA this weekend.

Thanks,
Alyce

Comment by JeffreySF on August 5, 2012 at 11:47am

I havent heard of this before.

Comment by Kraz04 on August 4, 2012 at 10:26pm

Hi, has anyone here tried eyebrow embroidery?
Any feedback or photos would be great as I am considering in getting it done.

Comment by LouiseMadeline on June 28, 2012 at 9:38pm
Thank you for sharing your stories. It never ceases to amaze me how insensitive and callous, and yes, stupid, people can be. I have grown emotionally since I last posted and I am now much more at ease with my alopecia. I'm no longer trying to hide it. When people comment on how lovely my new hair style is, I feel perfectly comfortable sayings it's a wig. And depending on who it is, I might or might not tell them about my alopecia. It feels good to not hide in fear anymore. Another great thing I did for myself was getting my eyebrows tattooed. At least now when I wake up and look in the mirror, I have expression! It feels wonderful.
I enjoyed your story about the three year old child....kids do and say the cutest things! Thank you again for sharing your story. All the best to you, my friend!
Comment by inverso on June 27, 2012 at 4:11am

LouiseMadeline, I wrote your story ...

One day during class at school, a girl came up to me about 30 years, she grabbed my head and asked, 'Hey, this is a wig?' ... It amused me so much stupidity and indiscretion, that I began to laugh and she didn't know how to behave, and walked away with ignorance.

Even once a boy in my class asked a question as stupid as this girl, 'why do you have it on his head (he was thinking of my headscarf)'. Human stupidity is appalling!

My friend have a 3 year old daughter, she is so lovely :) At first I went to her in a wig, but I felt uncomfortable - my head itched, and I felt that I need to scratch, then it took off immediately. What was her surprise when she saw that I pulled my hair and tried to do the same with your hair. And after a while she said "Atka, wear your hair ':)

Comment by Heather Curtis on June 11, 2012 at 1:31pm

Hi Everyone- I wanted to interject a little flyer of some research I am doing around the emotional coping with Alopecia Areata/ AT/ AU. If interested, you are a young adult, and are going to the NAAF Conference this summer (2012) in Washington D.C. please sign up! Should be a fun creative time! Stay beautiful people! And message me if interested.

Comment by JeffreySF on May 15, 2012 at 11:00pm

I'm taking Vit D3 2000 iu every 1-2 days

Comment by Mar S on May 15, 2012 at 6:38pm

Jeffrey, the Vitamin D is interesting. I know it's being used for a lot of autoimmune diseases. May I ask how much you are taking?

 

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