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Alopecia Universalis

Join today to meet, support and share information with others who are also living with all loss of hair on their bodies.

Website: http://www.AlopeciaWorld.com
Members: 851
Latest Activity: Sep 24, 2023

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Comment by rosamosqueta on January 29, 2012 at 10:32am

Hello, Beth. I have AU since 2009, and this year the hair inside my nose grew back, and some grey hairs in my scalp,but they grow very slowly. I shave my scalp once a month, and the hair is about 1 cm or less, and it covers about 10% of my scalp. I´ve been having this growth since october´11, and I don´t know if this is a good thing, but it gives me a hope.Who knows?

Comment by Beth S on January 28, 2012 at 8:43am

I have had AU for about 2 years. Prior to that I had very small patches that came and went about 5 times over 8 years. over the last month the light hair on my face has started to grow back as well as the hair on my ears. First it was once little spot so I tried not to get too excited as this would not be the hair I would want to grow back first but then the rest of my hair on my face started to grow back and it seems to be the normal type of hair I had before. Has anyone else experienced this after having AU? Was it just a start and did you have any other hair grow or just facial hair. I am trying to decide if I should have any optimism that this is the beginning of something bigger!

Thank you

Comment by Raymond on January 9, 2012 at 10:10pm
Hello Melissa. I'm an avid skier and generally love winter. But yes, my head gets cold if I'm careless for a moment. I have many toques (Camadian for winter hat - rhymes with nuke) Some thin some very thick. Sporting ones and "dressy" ones. My challenge was finding ones that stayed on my head. They would slide off or slide over my eyes. But then I discovered jogging toques. I think a bald person invented those. They resist sliding off and they come in many thicknesses. I have a good collection of those. When I ski I wear a thin running toque under my helmet. Very warm. So if you're having challenges keeping your head warm, try a running store and check out their winter running hats. Although I'm sure "hot shots" would work too. They work in gloves, I'm sure they'll work in hats too. :-).
Comment by Kathryn on January 9, 2012 at 4:57pm

Melissa, I'm with you! This has been my first winter w/o hair, and I"m FREEZING! I'm always wearing hats and long underwear, but I am cold all the time. Then, suddenly my coldness turns into a hot flash, and I'm sweating! Go figure. :-/

Comment by Melissa on January 8, 2012 at 8:48pm

My head is cold, how about you?
You know how they sell those little heaters you can put in your gloves to keep your hands warm on skiing trips? Wish someone would invent ones that can slide over my scalp.

Comment by charlene ribeiro da silva souza on December 26, 2011 at 9:48am

Um feliz natal e um próspero ano novo a todos vocês amigos, colegas, enfim um novo ano de superações e conquistas...abraços!

Comment by ahmed on December 26, 2011 at 9:20am

hi

Comment by Deana DG on December 5, 2011 at 6:38pm
Hey everyone, I'm new to AW but have had AU for over 20 years. So nice to be here, don't know why it took me so long to look. When I first had hair loss so long ago there was nothing like this but I guess technology and social media has changed in the past 20 yrs...lol. I just want to say thank you to you all for sharing. I knew I wasn't alone, it's sooooo nice to be here!!
Comment by jennifer on November 20, 2011 at 8:47pm

Thanks so much everyone for taking the time to respond to my question about squaric acid. I really, really appreciate it! I love having the support on this site and hope I can provide support to others in need. Love, Jenn

Comment by rosamosqueta on November 16, 2011 at 7:21am

Hello, everybody. It´s my first post here, and I´m glad to be part of Alopecia World. My hair loss begun when I was 46 (2007)I have universalis now ,and I think I learned to accept Alopecia as part of my life. Sometimes I miss my hair, but I realized that we have only this life, so we must enjoy every minute of it. Even hairless, we can do everything like others (except washing and combing our own hair....)So, life is good, and is worth to be lived.

 

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