Comment

Comment by Susan Innes on November 15, 2011 at 8:19pm

Hi Raymond, Congrats on your first post. Your message sounded very much like another story that a father told me at one of the NAAF conferences. He said while everyone else in the room was counting fingers and toes, he was counting hairs:). Children are amazingly resilient when they are given a stable home environment and see the parents' strength; there was a bald fellow standing in front of me in line, holding a small child in his arms while waiting to register. I noticed that the child was bald so I asked if daddy had shaved his head. He laughed and said that actually both of them had alopecia universalis, and I have to say that "both" looked very happy.

I hope that this disease has not affected your life so negatively that you consider it a curse for your child. It's sounds as though you have learned to respect yourself for the strong human being you've become. If this has made you a better person, then wouldn't it be okay if this did happened to your son? No doubt you'll be ready:). ((Hugs)) Susan.

Comment by Raymond on November 15, 2011 at 3:07pm

Hello all. First post on this site. A lot of awesome people here. My first child - my son - was born Jan 5. My absolute first wish (other than general good health) in the delivery room was "PLEASE HAVE HAIR" He had a full head of hair with eyebrows. I was so relieved. 10 months in, he still has healthy hair. I'm happily married with a son and I love my life. But my fear is that my son will acquire what I have. I've read a few posts about kids with Alopecia and I've learned a lot. I still have the fear, but if it happens to him, I'm ready.

Comment by Bald and Fabulous AKA Terri on November 13, 2011 at 7:50pm

Welcome Lance. I too have found this a wonderful site and only found it just over a year ago. I'm sure you will "meet" wonderful people like I have.

Comment by Lance on November 13, 2011 at 2:47pm

I have been looking for a website like this for awile. it feels really good to be able to talk and read about other people that have this condition. It really helps me out i dont feel like the only one that has this condition.

Comment by Denise on November 7, 2011 at 7:04am

its awsome knowing that you're not alone or strange. up until recently it felt like i was the only odd one in the world. i hav'nt met other people with a.u till i joined alopecia world. when my hair completely fell out and i visited a dermatologist, he suggested a wig. i guess to help me hide from the world. i stumbled into alopecia world but looking back i think he should hav suggested a support group so i could face a.u not hide it away. as time goes by you get sick and tired of being sick and tired. now im just living life, everyday is different.

Comment by Stacey on November 7, 2011 at 4:22am

Mine fell out within around 12-18 months. First 6 months patches of head hair and eyebrows; next patches merged and last 6 months the rest of the head hair and body hair. Have been hair free for almost 3 years. No regrowth for me, at all, ever. Don't expect any either.
I'd love to have my beautiful long healthy brown hair back again, and flutter my eyelashes, and raise my eyebrows. The acceptance that the old me is long gone and even if it grew back I would never look the same, is the most difficult thing about alopecia, for me. Day to day, I wear a wig or bandana, everyone knows, and I more or less cope just fine, but we all have our moments when we have a little cry in the mirror.

Comment by Sherry Washington on November 6, 2011 at 10:38pm

Delena I apologize for hearing about your new diagnosis; however it makes me wonder how you have handled it for the past 11 years. If you're feeling so unattractive I'm sure it's affecting your marriage. You know it takes a confident woman to deal with the new and attractive you. It's not that devastating as you make it once you get pass it. Get dressed up and go out on the town....leave that pity party alone because it's affecting you and your loved ones vi personally got tired of crying and girded up and went to war. Believe it or not, I still get the laughs. I got some today in church by females wearing full wigs vnow how can they laugh when I am being myself. Something must have had them feel big,but guess what? I hugged them and told them to stop all that laughing. Now who do you think felt small? Just keeping praying for strength and before you know it will be a breeze.

Many blessings to you and the family.

Comment by Jennifer on November 6, 2011 at 10:36pm

Delena,
my husband and I, who are absolute soul-mates, went through a bit of tough time as I transitioned from AA to AU. It was a horrible shock to me and a big one for him, too. But we really got through it and even the other day he said to me, with a big smile on his face - "I can't even remember what you were like with hair". This is not easy, but, like Sherry said, the best thing is your acceptance. I know that my acceptance helped my husband, too - he was far more bothered and mostly concerned by my own issues with it. You look beautiful to me! I'm sure you look beautiful to him...we both have great looking bald heads so celebrate them and don't be afraid to have sad moments - just let him know that some days it's harder than others - my husband really got that and yours will, too. Blessings to you!

Comment by Delena on November 6, 2011 at 10:27pm

Hello everyone. Ive dealt with alopecia areata since 2001. I am now , as of my dermatologist appointment this past friday, alopecia universalis. And I'm having a hard time dealing with it. Right now I feel very unattractive and i am afraid it it's starting to affect my marriage... How did you guys deal when your hair first fell out?

Comment by Bald and Fabulous AKA Terri on November 6, 2011 at 9:34pm

Thank you Sherry for sharing this beautiful reminder

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