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Comment by Laura Dasi on October 7, 2011 at 1:32am

Hi Everyone,

I joined this site a while ago but haven't been very active on it. Decided to change that. Check out my blog new blog post. I was very empowering for me to share.

Comment by Brianne on September 23, 2011 at 10:34pm

I just cannot belive this social network! It makes me feel so much better to know that I am not alone. 11 years ago when I first got Alopecia Universalis there was no such thing as a social network. Now I just cannot belive it. Looking at all these pics of people being them selfs and being comfortable. It just fills my heart with so much joy.

Comment by Gill on September 2, 2011 at 3:13am

Hi from the UK

I love this site, everyone is so open and pro active.

I am AU, and have been totally for almost 9 yrs. I have been completly au-natural for 4yrs. No, im not brave, confident or amazing, just uncomfortable, hot, itchy and continually re-adjusting where i wore a wig.

My opinion, and its is only my opinion, as everybody deals with this condition differently. I am what I am, it took a while to accept it, but I know the chances of getting it back are almost nill. I always felt when I worn a wig, I was "hiding" my alopecia from people, and myself. then as I came to accept it myself, I was hiding from others, and that was not my problem, it was theirs.

Im not saying it was easy, and some days it's still a challenge, but what you see is what you get. If you dont like it, dont look!! I have tattooed eyebrows, and am thinking about eyeliner, but in Uk its not cheap. Im not a great make up wearer, but need it now.

Im 6 ft tall, over weight, bald, piggy eyed, with other health issues, divorced, lonley, 53 yr old woman( 54 next week). I have enough issues of my own, with out worrying what others think of me.

Its not everybodies way, and I am far more acceptable of others now, that is one good thing to come from this, another is I think it has made me a stronger person, which has helped with life lately.

Would I like my hair back ? of course I would, or would I? definatley my eye lashes, not my leg or underarm hair, and lack of "personal" hair is a bonus.

Other than that, I ok. I only remember im bald when I see the look on some peoples faces, then depending on my day, they either get a big smile, or some days a comment, either make me feel good. Kids always gt a big smile!

Comment by margaret watson on August 30, 2011 at 5:13pm

Now that I am 54 and have had hair lose in patches since the age of 17, when I lost all of it just 3 years ago I can honestly say I feel much better and free as I can't hide my difference anymore. In fact (as I hate wearing wigs in case they fall off) I don't even notice when I walk into a room for the first time without any hair. I think I am confident in my own self enough to know this is my only problem and that most people have far worse things going on in their lives.Would I like to have my own hair grow back? Of cous eI would - more than nearly anything - but exclusively anymore. I really am at ease. I just wish other people would join mme and 'go out bald'. I still haven't met anyone else in my home town of Exeter who braves this in their daily lives.

Comment by Susan Innes on July 30, 2011 at 10:20am

Stacey- May I have your youthful glow? You are a wonderful ambassador...and brave to have tattooed brows and eyeliner; it always sounded too painful.

Tom- Planet-destroying chemicals...I'm sure; I use Walgreens Recovery Lotion (trying to recover "youth" not hair) and Vanicream, both hypoallergenic since my nose (without hairs) seems to be especially susceptible to scented lotions, with allergies heavily enlisted in the family. (Before retiring, I wore a baseball cap with special hospital exemption since these were banned per dress codes; but, now at 66 with the New Freedom "light" wigs which are so comfortable, I've decided to take a reprieve from answering chemotherapy-related questions, having to explain that I don't have cancer.) I never heard of hemp lotion....hmmmm, any drawbacks like attracting Wisconsin blood-thirsty mosquitoes the size of humming birds?

Actually, we don't have "cold" in Wisconsin; we have "frigid" which eliminates any temptation to open a home or car door which could result in hypothermia.

Comment by Tom on July 30, 2011 at 12:43am

well said susan. i am also a fan of lubing up my head after a nice shower. so clean and easy to maintain my skin.
i use hemp lotion, what do you use?

i am strictly bald all the time except for when work mandates it, or its cold out.

Comment by Stacey on July 29, 2011 at 11:35pm

Here, here! You guys are great =)

Its funny Susan, as I tell everyone too. I appear either with a wig or a bandana everywhere, so prefer people know in advance rather than not being recognised and reintroducing myself as the Stacey with no hair. I started a new job 2 weeks after the last of my hair fell out, so told everyone on my first day, so that I could be free to come and go looking how I wanted to, knowing that everyone knew, and I was not going to be confronted with providing explanations when I was not in the mood for it. I did it on my terms.

Preschool is a great place for questions - they all want to have a look and feel of what's under the bandana. I like to consider it a community service, as I am educating the children about looking different but being the same person underneath.

I have tattooed eyeliner and eyebrows to make getting ready easier, as I looked so washed out and pale without eye brows or eyeliner/lashes. I tried treatments for about 6 months while it was still AA, but apart from trying natural soaps and taking vitamins for my general health and well being, I have (more or less) accepted that I will be bald from now on.

My Aunty is too bald, and has been since she was a child. It is easier for me in my 30s, married and a mother. I had a chance to build self confidence and become myself, without having my appearance hinder or shape who I was. Now with AU, I have only grown stronger and more resiliant, and that is a good thing.

Comment by JeffreySF on July 29, 2011 at 9:23pm

Nicely stated Susan!

Comment by Susan Innes on July 29, 2011 at 9:10pm

It's sort of clean and dry being AU; there are no bits left over to worry about. The eyebrows and eyelashes are gone as are all the other things that clog drains, and it frees one to redesign oneself as desired. For instance, I am sometimes a blond and other times a brunette; the hair may be short or long. As for being with various groups of people, I simply disclose my situation to prepare them for the next encounter to avoid any embarrassment for either one of us. With two AU uncles who were loved dearly, it was understood that hair was not a factor in a relationship. It's a great way of weaning out the undesirables from one's life very quickly. Children may ask a lot of questions but once given answers, they very readily return to their other activities; so, in short, I'm quick to divulge the condition to preserve my freedom. (I also love to put lotion on a bald head after a great shower, not something done with a crop on the top.)

I'm not the public bald-lady type...way too old; but, it's important for each person to know their most comfortable lifestyle for the particular season of their life. The early stages can be a nightmare but as most of us have found out, the loss does have its advantages, and in many cases, makes us a more interesting, stronger people.

Comment by Mark McG on July 19, 2011 at 9:23am

hi folks, havent been on in an age, busy moving continent. Pop in now and again to see how my fellow follically challenged are keeping!Good to see this site and group is growing. Emory you are not alone, dont worry. Mine all fell out about 5 years ago and there wasnt very much I could do about it, so I realised I could either make the best of it or torment myself, I chose the former. It adds character, and in this world of homogeneity look at yourself as something special, unique and perhaps a bit more evolved than the hairy monkeys around you. Take the plunge and stick a picture of your beautiful baldy self up on your profile and dont be afraid to let the light shine, just make sure you have factor 30 on!....you are now amongst the smoothest customers humanity has to offer!

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