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Comment by Luciana Lépore on June 28, 2011 at 7:43pm

Hi Emory, like any lost, this is a process. You must let yourself to grieve. take it slow. AU sometimes can be reverse and sometimes it´s here to stay. The second time I lost my hair I thought I could beat it in a few months, 7 years and still no hair.
It is good to take breaks from treatments, but then go back, try something new, you never know what may work for you

Comment by Emory on June 28, 2011 at 7:14pm

Hi. I am brand new to this. I am 34 and was diagnosed with AA a few months ago that progressed to AU within a few weeks. Over the past 2 months, I have tried everything from high dose immunosuppression with Prednisone and Cellcept to XTRAC laser therapy (I am well connected in the medical field). Nothing worked and I'm sorry to say that today I have decided to stop all treatments. I have had my eyebrows and upper and lower liner tattooed but none of the pigment stayed the first round. I'm scheduled to do it again in a few days. It's been an absolutely crazy few months and I've just tried to keep things in perspective. It's very helpful to see that I'm not alone in what I'm experiencing.

Comment by Clifford on May 24, 2011 at 6:47pm

Hi all. I am new here. I have had zero hair for the past 43 years or so, and I have never met or communicated in any way with another person wtih alopecia before. My main reason for finding this site is that I have recently been diagnosed with microscopic colitis and I was wondering if it is more common among people with alopecia than with the general population. Both have links to auto-immune issues.
I would welcome insights re the above. Also, as an adult and father who lived through the hard times of childhood baldness and learnt to embrace my condition, I would be happy to communicate with anybody who needs encouragement, support or advice

Comment by Tom on May 21, 2011 at 11:19pm

recessive genes. my brother is super hairy, im completely bald.

Comment by Garden Girl on May 9, 2011 at 8:28am

Growing up, my next door neighbor (no biological relationship) had AU. At age 15, I developed AU. No one in my family has it. No one in her family had it. We did live near a chemical processing plant???!!!??
Who knows...

Comment by JeffreySF on May 8, 2011 at 7:55pm

I'll be at NAAF LA too.
CYA there Linda

Comment by Linda T on May 8, 2011 at 12:59pm

Welcome Emmie. I have had AU for only 2 years but I know the frustration and anxiety. Other members of my family have auto immune conditions. I have wondered if it is all related to my getting AU. My eyebrows grew back a few months ago and some hair but the hair is falling out again. Not sure what triggers the grow back or it falling out. I am going to the USA -NAAF Conference in Los Angeles in June. I hope to learn more. This is a good site. Glad you joined the conversation. It is good to know we are not alone.

Comment by Petra on May 5, 2011 at 7:25pm

Welcome Emme. Sorry you had to find us but glad you did.

Comment by EmmeGravråk on May 5, 2011 at 6:02pm

Hi everyone! Got a question for you; I´m a norwegian girl who´ve had AU since september 2006. Was totally bald december 2007-june 2010, weird thing is that my father also got AU for the first time in august 2006, that makes me wonder if we have been exposed to something that may have caused the outbreak of the condition.. Anyone who´ve heard about similar cases?
2006 was the first time my father and I experienced hairloss of any kind. Except for an occasional flu, the only other time my father and I have been sick at the same time was when we got a rather severe pneumonia that lasted for a month or so (in 2001)...

Anyways; stumbled over this site when I had a "bad no-hair day" and think it is really nice to see, learn, and discover how other people with AU and the other forms of alopecia are doing.
I try to not think about the hairloss so much, and have chosen not to try any kind of treatment. My hair started growing out last summer, and from december 2010 till now I haven´t used a wig. Have been wonderful, but now it is falling out again, and it is a little harder this time around. Since 2006 I´ve hoped that my hair would grow back out, and then it did, but now I can see what´s coming and the hope is fading a little more day by day.. It irritates me so much - the condition is winning over me, and I hate it. But I will keep fighting! :)

A comment little longer (and more depressing) than I initially was thinking, but this is the first time I´ve had the chance to communicate with fellow AU´ers except for my father, so hope you can excuse me!

Thank you to the creators of this site, and thank you for sharing your stories and thoughts!

PS: Read the comments on eyebrows and if it is some scandinavians with alopecia here, I truly recommend Hege Treiborg, based in Oslo, Norway. Tattooed eyebrows there 2 years ago and even my ophthalmologist (eye doctor) couldn´t see that it was a tattoo!

Comment by Carol Wilson on April 21, 2011 at 8:33am

I recommend having the eyebrows done in a feathering technique. Unless someone looks at you from a few inches no one will realize they are not real. Mine have faded a bit but I would expect them to be OK for at least 5 to 7 years. I did have my eyeliners tattooed and would never never do it again. It was agony and too thick and dark after. I always tone it down down with a bit of eye shadow on top and concealer on the bottom lid.

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