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Alopecia Universalis

Join today to meet, support and share information with others who are also living with all loss of hair on their bodies.

Website: http://www.AlopeciaWorld.com
Members: 852
Latest Activity: Jan 19

Discussion Forum

Stronger immune systems?

Started by Laura Adams. Last reply by Simahrya Apr 7, 2019. 43 Replies

Fingernails

Started by Stephanie. Last reply by Simahrya Apr 7, 2019. 64 Replies

alopecia univeralisis

Started by janetparsons. Last reply by Kimmbe Oct 12, 2017. 22 Replies

Comment Wall

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Comment by Luciana Lépore on March 21, 2011 at 10:24am
@Samantha, everybody has those days, knowing that sometimes help
to accept the lost is very hard, I lost all the hair 5 years ago and still have bad days
Comment by Samantha V.P. on January 20, 2011 at 8:29am
Greetings from Amsterdam, Netherlands well I am loosing bodyhair after 3 years of Alopecia ... so I join the group now.... I am not taking any medicine or have treatments. I try to accept and deal with it as much as possible. Have some very good days, good days and days the TV is watching me ;-).
Comment by Helenium on January 12, 2011 at 7:19am
Greetings from Sweden! For the first time since I became an Alopecian (3,5 years ago) I thougt it is perfect to be one.... I present aerobic classes and exercise a lot. Two minutes for a shower! No wet hair...
Comment by Laura Adams on December 29, 2010 at 2:09am
Greetings from Florida! I became an Alopecian sixteen years ago, hard to believe its really been that long, that for fully half of my life I have been all-over-hairless. Even the eyelashes fell out about five years ago, though they recently returned, much to my delight. The initial treatments were UV light therapy, a staining purple cream, Prednasone (I gained 15 pounds in 2 months), and cortisone injections in the scalp (ouch!). The possible causes are academic stress or a drug reaction between Thephylline and Cipro. I gave up on wearing wigs about 13 years ago, they just make me miserable. Since I am happier without them, I go around town with the 'natural look'. I do wear them once in a great while, just to have fun, but its far from a requirement in my book, for me personally. I get no trouble from people, no rude comments and surprisingly few stares. I feel like God chose this for me and He has chosen to protect me against societal backlash. I pray that my actions pave the way for other women with AU to feel freer to go natural if that will make THEM happier as it has me.
Comment by Luciana Lépore on November 19, 2010 at 8:12pm
It was a useless gross smelly cream
Comment by B.C. The hairless Guy on November 19, 2010 at 7:59pm
TEE HEE blue cheese is gross
Comment by Luciana Lépore on November 14, 2010 at 3:04pm
jaja I had a cream that smelled like blue cheese
Comment by B.C. The hairless Guy on November 13, 2010 at 10:12pm
I once had a cream that was supposed to grow hair but is only died my head orange..... HAHAHA
Comment by adam p. morales on November 4, 2010 at 12:12am
My daughter is 14 and was diagnosed with Universalis a little over a year ago. I would love to find somewhere for her to spend a weekend with other teenage girls with universalis. We are from Alabama, if you know if anything around the southeas please let me know. thank you
Comment by Luciana Lépore on September 27, 2010 at 7:21am
count me in for the census
 

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