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Alopecia Universalis

Join today to meet, support and share information with others who are also living with all loss of hair on their bodies.

Website: http://www.AlopeciaWorld.com
Members: 852
Latest Activity: Jan 19

Discussion Forum

Stronger immune systems?

Started by Laura Adams. Last reply by Simahrya Apr 7, 2019. 43 Replies

Fingernails

Started by Stephanie. Last reply by Simahrya Apr 7, 2019. 64 Replies

alopecia univeralisis

Started by janetparsons. Last reply by Kimmbe Oct 12, 2017. 22 Replies

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Comment by pat j madden on September 27, 2010 at 1:24am
Yes i have it too ,always thought it was a birthmark till now.Could it be some sort of defeciency like the pitted fingernails though?
also,
is there a regional population graph for people with au anywhere ?
does anyone know if its condensed to a certain area more than others?
can we ask that the information on this site be used to build such a graph?
a simple questionnaire upon signup and a constantly updating data sheet would answer alot of questions for alot of people ,for instance if one of the questions was. Do you have a birthmark on the back of wour neck? and a percentage out of everyone here beside it would benificial to everyone
The more i type it the more it makes sense- we need our own census!
an alopecia world census by alopecians for alopecians
Comment by Luciana Lépore on September 26, 2010 at 9:27pm
hola sabrina, acabo de unirme a la página, soy de argentina. vos?
Comment by sabrina paola piñero on August 26, 2010 at 9:34pm
Hola!!! alguien habla español???
Comment by emad monther alsa'adi on August 12, 2010 at 4:37pm
dear all i wont to share a knowledgeو I have tried all methods of treatment, but that does not work with me only the name of the medicine for nasal allergies Ordnance name Diprofos the way i use it Injection in the muscle and in my country the one injection cost 5$ but i hope no hair falls into place The reason it all over my body, one of the most difficult types of Alopecia If the spots I guarantee amazing results from the experiences with other people if any need more details this is my email :emad_83@hotmail.com
Comment by Monique on July 9, 2010 at 9:58am
If they can tell how by how many genes one carries how extensive the alopecia will be, has anyone specified (written) risk for related autoimmune diseases? Have you run across any information on that? Thank you for your thorough response and the deep information that you do!
Comment by Monique on July 9, 2010 at 8:46am
Thea, I'd appreciate knowing your source. I would like to read more on this study.
Comment by Volker on July 9, 2010 at 2:37am
hihiih:-)))
Comment by Diana on July 2, 2010 at 4:31pm
oh great... I was born in Germany! well thank Thea :-)
Comment by Diana on July 2, 2010 at 10:56am
Yes thanks for posting that info Monique - be interesting to see when any clinical trials will start - as I have RA and AU and Psoriasis - maybe I should guinea pig!
Comment by Mar S on July 1, 2010 at 11:34pm
Monique, thanks for posting this link. Doesn't surprise me though, I have a family history of RA and psoriasis, and I always thought the RA and AU were somehow linked. it will be interesting to see if the research can find a treatment, although probably not in my lifetime, I fear.
 

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