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Alopecia Universalis

Join today to meet, support and share information with others who are also living with all loss of hair on their bodies.

Website: http://www.AlopeciaWorld.com
Members: 851
Latest Activity: Sep 24, 2023

Discussion Forum

Stronger immune systems?

Started by Laura Adams. Last reply by Simahrya Apr 7, 2019. 43 Replies

Fingernails

Started by Stephanie. Last reply by Simahrya Apr 7, 2019. 64 Replies

alopecia univeralisis

Started by janetparsons. Last reply by Kimmbe Oct 12, 2017. 22 Replies

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Comment by Ethan Thomas on December 9, 2009 at 6:22pm
Hey everybody,
I'm a Sophmore in Highschool and I've had Alopecia for 7 years. Im 15 right now so i spent a little under half my life with alopecia. It started as Alopecia Areatea, but since 7th grade, it's spread and become Alopecia Universalis. I don't know my blood type, sorry. When it first started, It was extremly embarresing. Eventually a shaved all the hair on my head off, but the darker spots where there wasnt alopecia still shown. Im over it now, i dont care. Those in school who laugh are simply too ignorant to wonder what happened. And those who wonder what happened are simply too ignorant to ask me.
Comment by Monique on December 9, 2009 at 12:11am
Hello AU! I'm a graduate as well! I also have Hashimotos. Been wondering what other wonderful autoimmune experiences are there to be enjoyed out there.
Comment by Peggy Parrott on December 8, 2009 at 10:48pm
Hi Mike:
I found my blood type card. I am AB Positive. I have been AU for 3 years.
Take Care.
Peggy
Comment by Felicia Graham on December 8, 2009 at 10:21pm
I have the red mark on the back of my head too. I wonder what that means.
Comment by Rebecca Cox on December 6, 2009 at 5:31pm
I have been AU for two yaers now. Not really as bad as I first thought it was. I kinda like it now. Hey, I dont have to shave anymore!! we are different because god wanted us to be. love and peace ya'll.
Comment by Lalo Guerrero on November 30, 2009 at 4:56pm
I have had AU for the last 12 years and alopecia for the last 15 years...mmmmm
and I like it.....haha
it was very frustrating in the biginning, but, now I dont realy care.
I dont have any hair on my body.....jeeeeeeaaa....its cool.
Something that doesn't kill u, makes u stronger.
thanks God couse Im different and special person.
Comment by Ray on November 30, 2009 at 10:06am
Hi, I'm AU and my blood type is B +

I hope that this helps.

Ray
Comment by Peggy Parrott on November 28, 2009 at 11:57pm
Hi Mike:
I'll try and find my blood type card and let you know. Thanks.
Peggy
Comment by JeffreySF on November 28, 2009 at 9:28pm
Hi Mike,
I dont remember my blood type as I havent donated blood in about 25 years.
Have you heard of the Alopecia Areata Registry? They are based in Houston Texas and are researching alopecia areata with Govt funding.
I urge everyone to join as this will be the best way of finding a cure or a treatment that works.
I'm intrested in hearing more about your treatment.

Jeffrey
Comment by Mike Staffieri RHN on November 28, 2009 at 7:24pm
I've had alopecia universalis for 14 years and convential medical treatments in my opinion do not address the cause.I've recently became a certified nutritionist and I've changed my diet in the last 4 years and have done a slow chelation treatment using Chlorella and I have grown 60 per cent of my head hair back with eye brows starting to sprout as well in the last two years. I would like to do a study of Alopecia sufferers by blood type as I feel there is a strong correlation. If you would like to submit your blood type please send me your blood type and RH factor ex: A+ O- etc and when I get a large enough sampling I will post results
 

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