Comment

Comment by Peggy Parrott on November 23, 2009 at 9:36pm

My experience definitely left me with a fear to try any further treatments that for sure. Do you have AU? Did you go thru any treatments?

Comment by JeffreySF on November 23, 2009 at 1:51am

Hi Peggy,

I'm glad you are okay now. These drugs that supress the immune system can be very dangerous which you found out the hard way.
Your Dr was a little overzealous in trying to treat you! Yikes!!!

Jeffrey

Comment by Peggy Parrott on November 22, 2009 at 11:27pm

Hi Jeffrey:
I was taking sulfasalazine pills increasing the pill intake each week and using rogaine topical cream on my head along with another prescribed ointment
called Psoriatec. By the 4th week of taking the sulfasalazine pills I was up to 5 a day and then I started having side effects and one was that I lost my sense of taste. Everything tasted bad even water. I was having regular bloodwork done and the last one showed by WBC was down to 0 so the Dr. told me to stop taking imediately which I already had done on my own when the side effects started happening. As it turned out I had an allergy to sulfa that I didn't know about and so that was what caused the side effects and the WBC dropping. Within a month they were normal again but it was scary for that month. Thanks for the note. Take care.
Peggy

Comment by JeffreySF on November 22, 2009 at 10:48pm

Hi Peggy,

What did you take that brought your WBC to Zero. That is scary!
I'm glad you are feeling some acceptance to your alopecia.

Hugz,

Jeffrey

Comment by Peggy Parrott on November 22, 2009 at 5:58pm

Hi, I am new to Alopeciaworld and have enjoyed reading all of your comments and realize I have a ways to go in accepting my AU. I live in Michigan and am 59 years old. I lost all of my hair 9-10-06. It took 10 days and it was all gone and within 2-3 weeks all body hair was gone. So I have been AU for 3 years and am still trying to come to grips with it as it was totally devastating to me. I did go thru treatments thru the University of Michigan with no results other than taking my white blood cell count down to 0. That was scary. So since then I have not tried any other treatments. I have accepted my AU to some degree but obviously not to the degree that some of you on this site have. I don't like my husband to see my bald head so I always wear a hat of sleep cap around the house. I never go out without my wig and I don't freely talk to people about my condition. I prefer people to not know that I have no hair. Besides my hair I really miss having eyelashes and envy others with lashes. I have become friends with another lady in my area that has AU and that has been a big help to meet with her and talk to her about living with AU.
I hope that some day I will be more accepting of the new me and I pray for that. On a lighter note, I do like not shaving, getting ready in 15 minutes to go somewhere, not having a bad hair day, saving money on getting my hair done ect.
I have had the permanent eyebrow and eyeliner done ( definitely recommend especially the eyebrows) and I bought a vacuum wig which is the best money I have spent since this happened to me. It fits my head so well and it doesn't move or itch and I don't have to worry about the wind, ect. All my friends and family can't get over how real it looks and I love being able to take a shower with it on and then styling it like I did my own hair. Karen, who I bought the wig from said to me that having this wig would be the closest I can come to feeling like myself again and she was so right. I would highly recommend it to anyone with AU. The only drawback is that it is hot to wear when outside in warm weather but I can deal with that. I am an avid golfer and even though it is hot to wear, it is nice to be able to play and not worry about my wig being out of place on my head with the activity of golfing. I would like to know more about the Blinkies.

Comment by JeffreySF on October 9, 2009 at 11:01pm

Everthing is slowly coming back...no real treatment...only time will tell

Comment by Mar S on October 9, 2009 at 5:19pm

Jeffrey, are you using something for the eyelash regrowth or are they coming in on their own? That's good news to hear someone is having some regrowth.

Comment by JeffreySF on October 9, 2009 at 12:34am

I'm holding off on the latisse. Brown eyes and all...
I'm getting pretty good regrowth right now and dont want to mess up Mother Nature.

Jeffrey

Comment by Ronda on October 9, 2009 at 12:04am

My eyes are green now.
I don't care if they turn brown.
Yes I think you can buy they same or equal to Latisse at Beauty Ulta.
I think its about $130.00.
Mine I had prescription for it was $104.00.
Ok good luck to you will let u know the results.

Comment by JeffreySF on October 8, 2009 at 11:54pm

I'm pretty sure you can get Latisse in Canada...without a prescription. Am I wrong?

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