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Alopecia Universalis

Join today to meet, support and share information with others who are also living with all loss of hair on their bodies.

Website: http://www.AlopeciaWorld.com
Members: 851
Latest Activity: Sep 24, 2023

Discussion Forum

Stronger immune systems?

Started by Laura Adams. Last reply by Simahrya Apr 7, 2019. 43 Replies

Fingernails

Started by Stephanie. Last reply by Simahrya Apr 7, 2019. 64 Replies

alopecia univeralisis

Started by janetparsons. Last reply by Kimmbe Oct 12, 2017. 22 Replies

Comment Wall

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Comment by Catherine Olmsted on July 3, 2009 at 9:05pm
I just met a bunch of wonderful Alopecians in Houston and am so grateful to have met them. This was my first contact with someone with the same disease and it was scary, comforting, and yet uplifting. I'm thankful for all the support and kind words they will always be with me in my journey of self-discovery. It's time to start over!
Comment by sharon levers on June 29, 2009 at 5:51pm
hi there glad to have found this site i turned 50 last year and at the begining of this year my hair started to fall out in the end it got that bad my friend shaved it all of for me then i went and got flossie (my wig) i was later diagnosed with AT but just recently ive lost my eye brows and now i think my lashes are on the way out when is it going to leave me alone!!!
Comment by Tiffany Brosch on June 29, 2009 at 10:41am
Glad to be here! Thanks for having me! I got AA when I was 12 and by 14 I had AU.I am now 29. I have never met anyone with AU and have only met 1 person with AA. So glad that I now can talk to others about this.
Comment by Kayhan on June 25, 2009 at 4:42am
Hi everyone!
Turkey here!
Comment by Brandi M. Gurley on June 23, 2009 at 10:31am
Hey guys I just found out about this site.
Its awesome to have a place to talk to others that really know what ur going through.
Comment by keesha Johnson on June 9, 2009 at 10:57pm
Hello Guys,
This a really great site and I enjoy reading and leranig more about alopecia. Im really looking forward to some long term friends.
Comment by Mary on May 13, 2009 at 6:14pm
I have to agree, Ray. I feel much better now than when I had bald areas and spots of stubble. I LOVE not having to shave my legs or underarms. I really hope it doesn't come back because I hate to think of going through the patchiness and loss again.

Another close friend was just diagnosed with a recurrance of a very bad cancer. I feel so fortunate that ALL I have is AU!
Comment by Ray on May 13, 2009 at 11:39am
I think AU is much better that AA. I love not having any hair as I was really hairy before I had Aloepcia adn I now feel really clean and smooth all over.

When I had AA my head always had a weired pattern on it and now it is the same all over - bald!!!!!

I feel blessed with so many things and in fact feel that having no hair at all is a blessing compared to being AA.
Comment by Kimberly on May 13, 2009 at 10:25am
I have dealt with alopecia for 27 years now, beginning with alopecia areata basically for the first 14 years, then losing all my hair everywhere at 35 yrs old, which really did a number on my confidence, etc... have now been AU for 13 years and although I don't like it, I have accepted this as part of who I am, thinking it could be much worse, for that I am blessed with health and many other things. :-)
Comment by cody on May 8, 2009 at 6:39am
lostant Illinois
 

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