Comment

Comment by Jeanette Andrescavage on March 7, 2009 at 10:09pm

Melinda and Everyone- As you know, I am the mother of a 2 1/2 year old with AU. He does have little "fuzzies" on top of his head. I wait and wait to see if they grow any, but they all fall out or get rubbed out. I am so confused if this is "true" AU. His body makes hair, but not for long. He gets eyelashes, keeps them about a week, and then they fall out. Good pics are on my Facebook. (Jeanette Andrescavage).
I have had two pediatricians tell me to get his thyroid checked, I have even been told that if it IS low thyroid, then synthroid will correct the AU and he will be "normal". (their word). The poor little guy gets his blood checked, and his TSH is perfect for his age.
I am soooo frustrated by the lack of DEFINITIVE INFORMATION out there!!
He is a smart, healthy little boy who has surpassed all of his developmental milestones. He is a little small for his age. Does anyone else have kids with AU or have had AU since birth?

Comment by Lori Black on March 7, 2009 at 5:56pm

Hello Dan, Welcome to our corner of the world!!
Blessings!! Lori

Comment by Dan on March 5, 2009 at 7:09am

Hello,

I just wanted to say hello to everyone. I just joined your group about a week ago.

Dan

Comment by Mari on March 5, 2009 at 1:49am

Howdy everyone. Been a bit since anyone really checked in so wanted to send out a big hug to y'all :o)

Comment by Melinda Thiele on February 25, 2009 at 10:56am

Hi friends!
I've been AU 32 of 39 years. Very dry, scaly skin as a child, pitted nails, hives and eyes get extremely red easily (Vision is perfect!). Hypothyroidism was diagnosed early. I take thyroid medicine. The dry skin and hives have disappeared. Like many of you,I consider myself an unusually healthy person. Rarely sick. Feel like my immune system is super strong even though it's obviously a little confused on the hair follicles. ANyone else feel this way?

Comment by Mari on February 23, 2009 at 11:53pm

are they? I always thought they should be

Comment by Mari on February 23, 2009 at 11:29pm

I have never really had a problem with my nails, but have wondered why we don't loose those too. arent' they the same cells as hair? Just something I was always curious about lol

Comment by krupdogg on February 23, 2009 at 10:13pm

Hi Spot, About two years ago my nails started getting very brittle. I have had AU since I was 5. My mom said my nails were very brittle when I was little but I don't really remember them being this bad until recently. I thought it might be my diet but from what I've heard it is the AU. Someone recommended Biotin as a vitamin suppliment but embarassingly enough I have a hard time swallowing pills so I haven't tried it yet. I know a 5 year old can swallow pills but it is just one of my things. :-)

Comment by Spot on February 23, 2009 at 10:06pm

After I retired from the Marine Corps things may have been stressfull, had to learn to be a civilian!
My nails started to get very brittle. For about 8 months they were like that. I had to tape them when practicing Judo. If I didn't they would rip off. Has anyone else had brittle nails?
Spot

Comment by Lori Black on February 23, 2009 at 11:47am

I'm with all of you and the "no other health issues" besides the AU of course, I have always had sinus issues and a bad caffeine addiction LOL. I too am th only member of my family with AA, but was tested as a child for thyroid issues and blood disorders. My maternal grandmother died of Leukemia, so this was a concern, but I am healthy today and thankful to God for healthy children. Blessings to you!! Lori

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