Comment

Comment by David on February 17, 2009 at 9:05pm

Santi, my situation is almost exactly like yours. Sometimes I wonder if I'll ever get married and have my own family. I've been single for awhile now because most people only want to be friends.

Comment by Jeanette Andrescavage on February 14, 2009 at 9:16pm

Matt, e-mail me at nettiekakes@hotmail.com with the joke.

Comment by baldmatt55 on February 14, 2009 at 9:07pm

For me, I had a complete opposite experience. When I did start loosing my hair going into my freshman year of high school, I was pretty well known for reasons good, reasons not so good. I was known by most as a jock. Unfortunately EVERYONE knew me however as the guy who tripped and fell head first into a window in middle school. Define irony, it was my thick hair at the time that prevented me from getting cut. But from that age, I was naturally considered "different." I beg to differ and think there is a fine line between different and clumsy, but I was known as different. I was known as the guy who didn't feel pain because I was emotionless when I'd play football or when I'd get pranked upon, which the seniors did to the freshman football guys just because we couldn't physically do anything back about it. People basically thought I was a freak. They thought even more so when I lost my hair. I literally was called everything from Chia Pet to Crop Circle. There isn't a name I haven't been called, and I was a good sport about it, but it was pretty obnoxious. I learned to not really think about it. People would ask questions and I would make sarcastic remarks anytime someone says something about their own hair, and I think when I started giving people the impression that hair loss really isn't a big deal, it doesn't mean I have a health issue or anything, I was able to date and all of that. I'm not by any means saying I'm a ladies man, but I will go as far to say that I don't have insecurity because I'm different. I don't show it as a disability so I don't get questioned about it. In fact, I'm fresh out of a long relationship dating again. All I'm saying Santi is, what's worked for me anyways, is making it clear that my hair is like my shoes: some of us wear black shoes, some wear pink, I prefer barefoot regardless what you think. I did go from being teased to accepting alopecia and it can be contagious. I have another saying I use, it's a little more inappropriate, but if you can take a dirty joke, I'll tell it to your personally lol. I just don't want to get booted from this site

Comment by Mari on February 12, 2009 at 12:16pm

James I have three children and worry constantly that they will get some form of Alopecia. So far none of them have shown any thing so I am praying that will stay. My oldest is 17, guess only time will tell huh? LOL

Comment by baldmatt55 on February 12, 2009 at 12:03pm

In all honesty, I would be lying if I said I didn't go through that depression. I was the only on my wrestling team who couldn't do the annual hair bleach before league finals. I always wanted that ability to slick my hair back for that prom or spike it up for when I go out. Then I got my heart broken and realized that sure, I screwed up in a relationship, but regardless of what happened, there was a deeper person she cared for which is why we were together for so long and even engaged, and coming out of this, I look at all I do have to offer, and I realize that I have all of that regardless what my hair looks like. My hair, or lack there of, is not what makes me a good or bad person. It does not define me

Comment by Jennifer on February 11, 2009 at 10:28pm

My mom & I went through the guilt thing! She blamed herself for me having AU & my sister MS (both auto-immune conditions, incidentally) and we are both so happy to be who we are and how we function & contribute to our world. Michael will be who he is and perfect in every way, I am sure - he certainly has a loving and caring mom to guide him along the way....

Comment by Jeanette Andrescavage on February 11, 2009 at 8:28pm

I love that! God only made a few perfect heads. Michaels head is perfect, and always has been. Its nice to know that all of you who have posted are very positive.....it helps me out alot. There is the guilt factor. I hate feeling sad about his AU. Its not like its cancer. But, lets face it, much of todays society is appearance based. I need support groups like this, so as he gets older, Ill be able to say 'hey Michael, e-mail baldmatt55. he may have gone thru this as well." ;)

Comment by baldmatt55 on February 11, 2009 at 6:31pm

I went to get my annual football season haircut for freshman football when the barber freaked out. I thought it was his fault. Patches of my hair were missing. I refused to pay. Mom took the makeup pen and would color in the spots to make it look like there was hair there. I'd go to school praying I wouldn't sweat it all out. A few months go by and I notice these patches are getting bigger. I start getting the painful injections that Mr. Salt commented about. A few sessions in and the doctor decides he will not go any further with the treatments because I am significantly getting worse. A month later, we started in november, are now into April, I lost all of my hair, completely. Fortunately enough, 3 years later I did grow eyelashes and even eyebrows back. I have had Alopecia Universalis for 5 and a half years now and must agree, bald is beautiful. I used to have a rag mop on my head. Now it's an aesthetic perfect circle proving the point that God only made a few perfect heads.

Comment by Jeanette Andrescavage on February 11, 2009 at 2:25pm

My husband and I are not going to try any treatment for Michael at this time. He lost all of his hair (eyelashes and all) before he turned a year old. The dermatologist described this as "extreme" AU. Of all the research I've done, it looks as though he would not respond to treatment. We see a pediatric derm. in May. Not sure what i'm looking for by going.....I always feel like I just need ONE MORE DOCTOR to say he has AU, and then I'll believe it.

Comment by Lori Black on February 11, 2009 at 10:48am

Like Mari, I too am without eyelashes or eyebrows. A little fuzz on the head sometimes and one or two eyebrows, rarely any eyelashes at all for about 8 yrs. Had AA since I was 12. Had about 10 yrs with all my hair back, but was depleting my immune system with drugs and alcohol. Had my oldest sone and AU struck. Crazy the way this thing goes on in one's body! Blessings to you! Feel free to contact me anytime!! Lori

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