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Alopecia Universalis

Join today to meet, support and share information with others who are also living with all loss of hair on their bodies.

Website: http://www.AlopeciaWorld.com
Members: 851
Latest Activity: Sep 24, 2023

Discussion Forum

Stronger immune systems?

Started by Laura Adams. Last reply by Simahrya Apr 7, 2019. 43 Replies

Fingernails

Started by Stephanie. Last reply by Simahrya Apr 7, 2019. 64 Replies

alopecia univeralisis

Started by janetparsons. Last reply by Kimmbe Oct 12, 2017. 22 Replies

Comment Wall

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Comment by Mari on February 11, 2009 at 10:42am
Hi Jeanette. I have no eyebrows or eyelashes. I might get a rogue one here or there LOL but that is it. and sometimes have fuzz on my head but not much. And you are right, it does all come out. Any other questions you have feel free to shoot me an e-mail, always willing to talk!
Comment by Jeanette Andrescavage on February 11, 2009 at 10:23am
Hello all! My son Michale has AU and I have a few questions. Do any of you have eyelashes? What about eyebrows? Michael has "colorless" eyelashes, eyebrows, and peach fuzz on his head. It all comes out if manipulated in anyway. We belong to Children's Alopecia Project MO/IL, but no one else in the group has AU. Any help?
Comment by Mari on January 29, 2009 at 1:14pm
Oh I am totally in agreement with Becky and Ally! We need to be more "seeable" and then maybe people will start to be more accepting and stop with the cancer questions lol.

And all you newbies- WELCOME!!!!! Great to see you here
Comment by becky on January 29, 2009 at 11:22am
welcome to you all that are new. I try to get on as much as I can. I have a 1 yr old daughter. Don't get on much. I agree with you Ally we need a celebrity or someone that is in front of the camera to help raise the profile and acceptablilty of what we have.
Comment by Ally on January 29, 2009 at 11:17am
Time we had a News Presenter or TV celebrity with AU - to help raise the profile & accepatbility of AU?
Comment by Salvador on January 28, 2009 at 7:59pm
I've just found this website today....I think it is fantastic!!
Comment by James on January 28, 2009 at 12:43pm
Jill I also have never met others nor spoken to others with AU..until last week when I joined this forum. I find it somewhat comforting. Ask anything you want.
Comment by Jill on January 28, 2009 at 12:07pm
Hi. I've had AU since I was 13, I'm 28 now. I just found this site and have never spoken to anyone else with AU. I would love to chat with some of you and pick your brain. Please message if you wouldn't mind.
Comment by Helenium on January 14, 2009 at 4:31am
Thank you Melinda! I enjoy to be here! I read a lot and now feeling I'm not alone! Hugs to you all.
//Helena
Comment by Helenium on January 14, 2009 at 4:31am
Hi,
Have someone experience for permanent eyeliner?
//Helena
 

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