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Alopecia Universalis

Join today to meet, support and share information with others who are also living with all loss of hair on their bodies.

Website: http://www.AlopeciaWorld.com
Members: 851
Latest Activity: Sep 24, 2023

Discussion Forum

Stronger immune systems?

Started by Laura Adams. Last reply by Simahrya Apr 7, 2019. 43 Replies

Fingernails

Started by Stephanie. Last reply by Simahrya Apr 7, 2019. 64 Replies

alopecia univeralisis

Started by janetparsons. Last reply by Kimmbe Oct 12, 2017. 22 Replies

Comment Wall

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Comment by Roger D. on January 13, 2009 at 4:57pm
Thanks, I saw where you commented to him. Hopefully there will be 128 members soon :). Got to go for awhile. Talk to you later.
Comment by Mari on January 13, 2009 at 4:44pm
I tried to search too. Let me try again, sure would love to invite him :o)
Comment by Roger D. on January 13, 2009 at 4:43pm
Thanks Mari. If you search "austin" he is the first one standing with his sister. He is in a green sweater. I tried to search austin doles but it didn't come up. Thanks again. Very nice to meet you. If this site works for him I will definetly be in Houston for the conference. Actually I have two sisters that live there so it can be a triple treat. Take care Mari. I hope you had a great day today. Roger
Comment by Mari on January 13, 2009 at 4:29pm
Would love to Roger, just let me know how to contact him please :o)
Comment by Roger D. on January 13, 2009 at 4:17pm
Hi everyone. My name is Roger. My son Austin Doles has AU. I got him to join AW two days ago but he is not the type to start commenting on his own. Could a couple of you please suggest this group to him? I read a lot of the comments in this group and think this would be very good for him. He will be a great friend and maybe can contribute to someone else too. Thanks
Comment by Melinda Thiele on January 8, 2009 at 9:31pm
Sorry for your suffering, Helenium. It was hard being bald as a little girl but I sympathize with the pain of your recent loss. One thing for sure, in this group you'll know you are not alone. New people join every day. Express yourself often. It helps me a lot!
Comment by Helenium on January 8, 2009 at 4:05am
Hello everyone, I have AU since nov-07. I suffer a lot. Everyday actually! I have more than 350 km to nearest wigstore and no doctors will help me. I try to treat my self and my soul but I have never talk to another person who have AU! But I try to have hope - not for regrowing but acceptance (from myself). About the red spot - I have one! Stork Bite? Lots of babies also have one!
Comment by Nicole on December 25, 2008 at 10:12pm
i have always thought the red mark on the back of my neck & my 3 kids was some type of birthmark. I am curious now as too what does the red mark really mean. I am going to do some research....
Comment by Melinda Thiele on December 25, 2008 at 9:00pm
Proud to display the red birth mark a the back of my neck, right at the base of the scalp. Are we all related somehow?! :)
Comment by Rose on December 25, 2008 at 4:30pm
Hi, I also have the red mark at the back of my neck. It seems the world map in red!! I once read an article talking about this as a characteristic of pepole with AU. I don't remember where I read that!
 

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