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Alopecia Universalis

Join today to meet, support and share information with others who are also living with all loss of hair on their bodies.

Website: http://www.AlopeciaWorld.com
Members: 851
Latest Activity: Sep 24, 2023

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Comment by MattiasP on December 4, 2008 at 11:14am
Hey!
Sandy, that´s really nice to hear that your eyebrows and lashes are coming back. Congratulations! And Ryan, couldn't agree with you more about the dream come true thing. Certainly would be mine as well =)
Take care
/Mattias
Comment by Mari on December 4, 2008 at 9:23am
I am agreeing with Ryan too! Congrats......and I would have to say the AU category also. To me that makes the most sense :o) And a big ole hug back!!!!
Comment by Ryan on December 4, 2008 at 5:20am
Oh, sorry to forget the most important part of the message! Congratulations on the eyebrows and eye lashes! That's every AU's dream come true! Well, to be honest not everyone's, but mine!
Comment by Ryan on December 4, 2008 at 5:14am
Sandy, even though you have regrowth I would still throw you in the AU category seeing how you have less than 98% of your original hair. Also, AT would connote that you didn't have any hair on your head. So, my judgment is this: you can say you are AA with massive hair loss (because you now have hair on your head) or you can say you are AU with sparse regrowth. I think the latter makes the most sense. Anyway, I wouldn't bother with superfluous categories this late into the AA game.

Take care,
-Ryan
Comment by Fuzzless on December 3, 2008 at 1:39pm
Hi Sandi! I went on Cafe Press, but didn't see anything with the AU logo. Where did you see it??
Comment by Mari on December 2, 2008 at 4:42pm
Welcome Ruba! We definitely all know where you are coming from and it does get easier. If you need anything I am a great listener :o)
Mari
Comment by Mari on December 1, 2008 at 3:14pm
Heres to hoping that Ryan doesn't mind sharing :o) I would love to hear also. Welcome, you will find the best people here!
Comment by Ryan on November 30, 2008 at 4:05am
Hello, I just joined. I hope to have some interesting conversations in the future. Anyway, here's to being AU. *sighs*
Comment by Marie on November 29, 2008 at 12:19am
I've yet to take a picture of myself after hair. I'm 32 and lost all my hair 2 months ago...so I'm still getting used to life without it.
Comment by Children's Alopecia Project on November 24, 2008 at 9:48pm


The Children's Alopecia Project is based in Wyomissing, PA. We help children with alopecia build self-esteem, provide support and raise awareness. We are looking for volunteers for ALOPECIAPALOOZA August 7 -9, 2009 at the Sheraton Society Hill, if you are interested reply to this or email me at jefferywoytovich@yahoo.com

On Saturday, March 28, 2008 we have our Spring Spectacular Silent Auction. Open Bar, food, Berks County Jazz Fest Location, hundreds of silent auction items. The last four years we have had a total of 1400 attend raising $140,000! We are always looking for sponsorships and donations too!!
 

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