www.alopeciaworld.com
Established to be the national Australia body supporting research to find a cure or acceptable treatment for alopecia, support those with the disease and their families, and inform the public about all forms of alopecia areata.
Website: http://www.aaaf.org.au
Members: 153
Latest Activity: May 12, 2017
Started by Vesna Devcic Sep 18, 2010. 0 Replies 0 Likes
Hi All our AAAF supporters, please visit our Facebook page https://www.facebook.com/aaafonline/Or visit our website should you require further…Continue
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Hi Holly,
We are currently organizing an event for Sunday 25th March in Perth. The AAAF does most of its correspondence via email, if you would like to be included please register here http://www.aaaf.org.au/index.php?page=alopecia-areata-registry
Hi Holly welcome to Aus :)
Greg is the AAAF Branch Manager in Perth and I am sure would like to hear from you! He can be contacted on greg@aaaf.org.au
Take care and hope you get to meet some friends in Perth!
Cheers
Ves
Hello everyone :)
I arrived in Perth from Wellington, NZ, late September 2011. Now that I've settled in a little, I'd love to meet other people who have Alopecia and are based in Perth. Are there any upcoming events, or coffee catch ups?
Cheers :)
From the AAAF and myself we would like to wish everyone a very Merry Christmas and a Happy New year !
Best Wishes
from the committee at AAAF
Announcement - We have a new AAAF support group in W.A!!!
Greg O'Rourke - Greg is taking up the position of AAAF Branch Manger in Perth. Greg has held several senior management positions, is well connected in the community and has two teenagers with Alopecia Areata. You can contact Greg on greg@aaaf.org.au or 0417 937 844
Hi Everyone,
For those interested AAAF has launched our "wigs for Kids" program,
See the attached link
http://www.aaaf.org.au/index.php?page=wigs-for-kids
Yesterday we received our cheque from the CBA Staff Community Grant for the establishment of the Wigs For Kids initiative, more details can be found on our web site on how this program operates. I was so excited that they choose our cause from thousands of applciations. This grant is from Staff donations contributed from thier salary each pay. They raise 1 Million a year- the 2nd largest community giving in the world.
REminder for Victorians - AAAF AGM is on Sunday 4th Dec at South Melbourne Town Hall, 208-220 Bank Street, Sth Melbourne - 10am to 1pm In the community Meeting room.
Anyone interested in joining the committee, we hold 4 meetings a year and do 90% correspondence electronically.
We have the following positions that we are seeking to fill including committee positons:
- Grant Applications
- Marketing
- Event coordinator
- Fundraising coordinator
Contact info@aaaf.org.au for the committee application form.
Hope to see some of you there - Coffee/Tea and cakes will be available if that can tempt you :)
or if you have any feedback or any discussion topics please send to info@aaaf.org.au
Colonial First State Charity Promotion
From 21 November till 7 December 2011 you can nominate AAAF. We could win $5,000 donation from Colonial First State. Plus you could win $500.
SO, HOW DO YOU ENTER?
Visit 2UE if you are in Sydney, 3AW if you are in Melbourne or 4BH if you are in Brisbane.
Simply fill out the online ballot on the following sites
www.2ue.com.au/comp-cfs
www.3aw.com.au/comp-cfs
www.4bh.com.au/comp-cfs
It would be great to get some more funding to be able to do better things to support people with all forms of Alopecia Areata, Totalis or Universalis, such as our Wigs for kids programme and perhaps a new initiative!!
Vote for us!
Western Australia - Michelle who has been the phone contact for 5 years is now moving to Darwin in January and will not be able to offer this service for 18 months.
Michelle has been the first contact point for those in W.A. providing information and direction of services available to Alopecia Sufferers.
If you would be interested in taking over this role, please supply your email to info@aaaf.org.au to further discuss becoming involved as a support person to Alopecia Areata sufferers in WA or representing AAAF in your state.
We are also seeking interest of people in NT / TAS as well in regards to becoming a support contact or rep. Its not hard work and if you are passionate in helping those with Alopecia Areata please contact us on the above email.
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