Australia Alopecia Areata Foundation

Information

Australia Alopecia Areata Foundation

Established to be the national Australia body supporting research to find a cure or acceptable treatment for alopecia, support those with the disease and their families, and inform the public about all forms of alopecia areata.

Website: http://www.aaaf.org.au
Members: 153
Latest Activity: May 12, 2017

Discussion Forum

About AAAF

Started by Vesna Devcic Sep 18, 2010. 0 Replies

Hi All our AAAF supporters, please visit our Facebook page https://www.facebook.com/aaafonline/Or visit our website should you require further…Continue

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Comment by Vesna Devcic on April 6, 2011 at 4:33am
Hi Something, at AAAF we accept people with all forms of Alopecia including AGA...checkout our site www.aaaf.org.au for more information....
We have a very active group in Melbourne and support groups in other states that have support group meetings and you would be most welcomed to join :D
Comment by Vesna Devcic on April 6, 2011 at 2:30am
Ok So I have 2 people wanting a coffe and chat....anymore takers :) at this stage South side of Melb looking good unless we have some North Westerners interested ???
Comment by Vesna Devcic on April 6, 2011 at 2:24am
AGA is Androgenetic Alopecia :)
Comment by BTB (John) on April 5, 2011 at 10:20am
What is AGA please John
Comment by Flip Flop on April 5, 2011 at 9:14am
Hi Vesna, thank you for the invite into the group. I don't have AA, though - am suffering (and I can't emphasise that word enough right now) with AGA.
Comment by Vicki H on April 5, 2011 at 6:56am
Hi Vesna ... I'd like to come but it will depend on when and where. Vic
Comment by Vesna Devcic on April 5, 2011 at 6:54am
Angela
Will come back to you soon with a venue......anyone else for coffee catchup???
Comment by Angela on April 4, 2011 at 10:16pm
coffee & chat would be good Vesna
Comment by Chel Campbell on April 4, 2011 at 2:12am
HI John,
Always looking for passionate volunteers to provide ideas and assistance. The AAAF currently has some activities initiated that will assist in promoting more awareness into all forms of Alopecia Areata to reduce the out of pocket expenses, for both treatments and head coverage. It takes time and we are all volunteers. Send me and email at chel@aaaf.org.au telling me what you'd be prepared to do to assist in moving this forward. Chel
Comment by BTB (John) on April 3, 2011 at 2:00pm
Let's see if this group has the power, desire and ability to get Govenrment to recognize AA (not the step one) as a disease that the persons who and i choose these words with empathy and not to either dramatize nor negate the effects of the disease. I believe Alopecians suffer humiliation, hardship of emotional and monetary states, feel ostracized, unacceptable in physical appearance, are want to hide there condition due to misunderstanding by those who don't understand the extent of how this disease can affect a person emotionally, spiritually, and financially. Alopecians can feel like freaks are constantly offered crank quack cures, at great expense, I am just bald by dint of being and if men suffer from a disease we run the world and we are vain enough (me included, witness the money I have spent on hair transplant for proof of that statement) to be using a real cure baldness, take a look at contraception we invented the pill for women se we were not responsible but invent Viagra to make sure we get erections until we die on the job so as to speak. Sorry enough of my anti male rant back to my main point surely we and speak of Australians here mainly, due to the wonderful socialized medical system in our country were we can get most treatment free of charge and the at nominal cost, cancer patients pay a small amount for there wigs so why not Alopecians. I am retired and have got time to help but I am a more up front PR spokesman type, not great at paper work etc but someone in this group is so is anyone going to listen to hyperbolic rhetoric (Pats words ) and do something the worst that can happen is get our heads on television and bald can be quite hot on the little screen Captain Pickard, the Borg Queen, Ripley in Alien 3 the list goes on. PS I am on holiday and can't sleep I may wake up in the morning and regret this whole as a sleep deprived 60 year pensioner ranting attempt to bring the glory days of protesting for Aboriginal rights and against the Vietnam I leave it to my wiser balder and may I say wonderful AA friends to set me right
PS that does not include you Pat you can do that anytime.
Love to John non suffering partner and empathizer. Xoxo
 

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