Comment

Comment by Chel Campbell on August 13, 2013 at 5:56pm

AAAF Funds Alopecia Areata research at Epworth Dermatology / University of Melbourne.
It is my great pleasure to advise that AAAF has been successful in securing the services of Jane Li a PhD student at the University of Melbourne, studying the subtypes of immune cells
(known as T cells) in Alopecia Areata. T cells are a type of white blood cell involved in various immune responses in the body. Much evidence exists to show AA is a T cell mediated disorder. Memory T cells are a subset of T cells that persist in the body and provide an immunological 'memory'. A new type of memory T cell known as resident memory T cells (TRM cells) has recently been described which reside in the skin and play an important part in skin immune function.

The overall objective of the research project is to determine the effects of corticosteroids on immune cells, known as T-cells, in the skin of alopecia areata patients. Corticosteroids are the most common treatment for alopecia areata, but often cause debilitating side effects and has a 20% failure rate and significant side effects. Understanding why the significant failure rate and relapse pattern are the main drivers for this research.
The project will comprise three Aims, as described below.

Aim 1. Characterise the subtype of T-cells present in human alopecia areata.
Aim 2. Evaluate the activation state of T-cells in alopecia areata skin
Aim 3. Determine the direct effects of corticosteroids on T-cells. . We will compare different corticosteroid doses, to determine which responses are most sensitive to this treatment.

The first outcome of this project will be the demonstration that corticosteroid treatment does in fact alter the natural history of AA.
A second outcome will be the identification of markers for the remission of Alopecia Areata and for susceptibility to relapse.

Jane's supervisors include Professor Rodney Sinclair, dermatology clinician-researcher and Director of Epworth Dermatology, the largest hair loss clinic in Australia, and Professor Frank Carbone, one of Australia's leading immunologists.

This could not have occurred without your support. We all in our own way are promoting awareness into Alopecia Areata, and it is through this continued support that we have been able to raise the funds needed for this research.

Comment by Chel Campbell on August 13, 2013 at 5:55pm

NSW -Time to get your dancing shoes on! Reuben from Redwoods has organised multiple bands to donate their time as a fundraiser with all door proceeds coming to AAAF for research
FAMILY FREINDLY EVENT bands are Redwoods, Maddi Behringer, Mordechai
Come meet Stephanie and James.
Entry fee is $5.00
Saturday August 24th 6:30pm to 9:30pm
Glenmore Park - Anglican Church , 16 William Howell drive Glenmore Park. Book it in your diary.

Comment by Vesna Devcic on August 3, 2013 at 3:36am

Happy International Alopecia Day

Comment by Chel Campbell on July 30, 2013 at 9:41pm

QLD - Saturday 31st August 12:00pm - Lunch get together. This year AAAF will be organising an Open Day in November. We are very interested to know what information you would like presented. So in preparation and organising of this event, Liz Bear the S.A. Branch Manager will be going to QLD and invites you to come and lunch with her. This is a informal meeting and a chance to interact with others, find out what is happening at AAAF, the updates on the medical research, AAAF programs, meet our volunteer organising the event and as always ask those questions.

We will be meeting 12pm. If you’re interested in attending can you let Liz@aaaf.org.au know so we have an indication on numbers.

http://www.fishermanswharftavern.com.au.

Comment by Chel Campbell on July 30, 2013 at 9:24pm

NSW To celebrate International Alopecia Day this Saturday 3rd August in Sydney, we are asking Family and friends, to please join us in celebrating the unveiling of the AAAF sail, which is sponsored and to be proudly sailed by Lincoln Crowne Sailing in the 2103-2014 season.
We will meet at Lyne Park in Rose Bay, New South Wales from 12pm to 2pm. The event will be a great reason to meet new and see some also familiar faces.
Light refreshments provided. Look for the AAAF Banners. Group photo will be taken around 1pm.
http://www.woollahra.nsw.gov.au/recreation/parks,_reserves_and_play...
RSVP krissy@aaaf.org.au

Comment by Vesna Devcic on July 14, 2013 at 6:39am

Hi Melbournians (even regional Victorians!)
AAAF are holding a Children's Play Day at Jells Park, Jells Rd, Mt Waverley on Saturday 27th June at 2pm - everyone to meet at the Giant Wooden Playground.

All families are welcome and these days are usually so much fun for all children in the family, with or without Alopecia :)

Please RSVP by email to info@aaaf.org.au if you are intending on coming as we will have alternative plans just in case of rain!

We will require a mobile number from you so that we can contact you on the day if plans do change.

See map for Jells Park -http://parkweb.vic.gov.au/explore/parks?query=jells+park

Hope some of you can make it!!

Comment by Vesna Devcic on July 12, 2013 at 6:37pm

http://redwoodsmusic.bandcamp.com/album/all-of-the-strands-single

Hi everyone!
AAAF Song - Strands is now live!!

AAAF thanks Reuben and all members of the Redwood band for the generosity of time, expertise and continuous awareness programs. Enjoy the song.

http://redwoodsmusic.blogspot.com.au/2013/05/strands-goes-live-and-... has the link and the story, so excited for it to be up.

All money from purchases will go to the AAAF!

Comment by Vesna Devcic on July 12, 2013 at 6:28pm

Just a reminder, AAAF is running two studies in 2013. Both are for those over 18. Please help us to help you and those that come behind you in understanding the emotional journey in all forms of Alopecia Areata by participating.

1) You are invited to participate in a research project to evaluate the quality of life, psychological impact, and resultant acceptance of Alopecia Areata (AA) diagnosis. The study is entitled “Alopecia Areata: The impact over time.”
http://www.aaaf.org.au/uploads/ITP_%20AA%20The%20impact%20over%20ti...

2)Women Only - You are invited to participate in a research project to investigate the impact alopecia areata has on women’s self-esteem, depression anxiety and coping strategies. The study is entitled “Investigation the impact of Alopecia Areata on women's self-esteem, mood states and coping”. http://www.aaaf.org.au/uploads/ITP%20_Impact%20of%20AA%20in%20Women...

Comment by Vesna Devcic on June 13, 2013 at 7:04am

Hi Victorians,
AAAF has negotiated an entry price of $10.50, instead of $21.00 per head at an ice skating rink in Oakleigh.
See http://www.icerink.com.au/

AAAF have volunteers that have their working with Children authorisations and will be on board to assist those learning to skate. Anybody is welcome to attend this event.
Use of frames for children learning to balance is free
AAAF are also providing drinks & nibblies and there is also a kiosk available. Session commences at 2pm - RSVP info@aaaf.org.au

Comment by Vesna Devcic on June 7, 2013 at 6:47am

ACT'ers don't forget the dinner on this Friday 14th June!
6.00pm at "bite to Eat" Eggleston Rd, Chifley. Families are welcome and please RSVP to info@aaaf.org.au by Mon 10th June. Meg our ACT manager is looking forward to meeting you all :)

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