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Comment by LA on March 22, 2018 at 11:05am

@HopelesslyFaithful I understand your pain completely. I too constantly pray that my hair will begin to grow back. I have tried treatment after treatment and am still trying. I currently am missing about 70% of my hair. I either wear a hair topper or giant headbands (Natural Life makes amazing bandeaus that cover your entire head if interested- and they are comfy and cute). It is so hard to not feel free to just let my hair down and constantly worrying that something is showing or that someone will wonder why I am always giant headbands. I posted a facebook post after much consideration one night and told my facebook peeps about my alopecia. This was such a difficult thing for me to do as I am typically a private person. However, being open with it has helped me worry a little less about what people think (not that we should be doing this, but I struggle with it anyways) because I know that they likely know about my situation. Additionally, people were so supportive and loving, which helped. I often wonder what God's plan is in all of this. I too want my hair back but have noticed that I have become stronger through this process because I did not have a choice. However, I do not give up hope that my hair will grow back, no matter how bad it gets, but I also try to live in peace with the fact that it might not. There is no easy way to handle this completely unpredictable disease, but I think surrounding yourself with people who love you unconditionally can be so helpful. I understand feeling punished too- I have felt like that for so long and sometimes still do, but I know that God loves me and He loves you and I believe that more than anything. We are created in His image and that is beautiful. Just hang on to hope, because it can be so easy for the negative to overwhelm you. I apologize for typing so much- I just understand what you are saying so much. If you would ever like to talk more or simply vent, feel free to message me. 

- Lauren 

Comment by HopelesslyFaithful on March 22, 2018 at 10:37am

Sorry for the typos...

Comment by HopelesslyFaithful on March 22, 2018 at 10:34am

Happy and yet sad I found this group. Like some folks I've read about, I'm still not open about my alopecia aerata. I've delt with it since we moved up north. Patches and sideburns missing. I know it could be worse, the sides are gone and sort of coming back. I have to wear it down to hide it, it took the tail end of my eyebrow, others don't notice but I do. It's hard, I sometimes worry that God's idea of answering my prayers is allowing my hair loss to make me better. But I don't think I want that courage and strength that I see in others. I still wish and pray for hair. I confess often because I do have those depressing days. I think part of me feels like if I start to acknowledge it with others, it will be part of me and never leave. I can't really wear a wig as I do have thick hair but the sides are noticeable if I wear by hair back tight. It's really frustrating. I dont know what to expect, more growth or will it all go. if it goes a wig would be easier to wear...maybe. But then I will be more depressed. I'm tired of autoimmune diets, holistic and medical advice. I'm tired of the battle and at times tired of praying and not knowing. And I fear my little ones might develop it. I consistently pray that they don't. 

My allergist says he has seem autoimmune disorders clear up once allergies are under control so now I'm suppose to be doing allergy shots but i'm very allergic to enviormentals an the shots make me feel bad. I'm on Allegra now and have put covers on pillows and mattresses in our house to control dust mites. It might make sense, the alopecia started 7 years ago when we moved up north and around the northern regions due to my husband's work and I developed severe allergies. My dermatologist suggested a jax inhibitor which I am scared to take. My rheumatologist suggested to try de-stressing techniques...like I haven't. I know I should be thankful I don't have something more serious, but today is rough. Sorry to sound so negative. Perhaps tomorrow will be a more hopeful day, as far as being OK with alopecia, my husband is supportive and accept me. I'm having trouble with that and I just feel punished. I'm sure that's the wrong outlook. 

Comment by CurlyK on July 27, 2017 at 9:47pm

Sara, don't ever doubt that you are beautiful and valued by our Heavenly Father. I have frontal fibrosing alopecia and decided last summer to get a hair piece. It was the right decision for me. I think you are wonderfully brave and honest in your decision and you never know who God will bring in your path who needs to know your story because they have a hurting heart and need hope. I've had opportunities to encourage and pray for other women I've met since I've been open about my alopecia. God bless you Sara!

Comment by Larry Barbee on July 27, 2017 at 9:24pm

Hi Sara, and welcome to Alopecia world. I think you've answered your own question. To wig or not wig is an individual person's choice, and I think you've made your choice. Doing what you think is right isn't always easy or popular. You're a young woman at a difficult time of your life - high school! - and I think you haven't chosen wrong, you just need some reassurance that living your life as an openly bald woman was a valid one. I think you have an opportunity to experience God's love in ways you never imagined and can share that experience with others. I'll be praying for you.

God bless,

Larry

Comment by Sara on July 27, 2017 at 8:21pm

Hello! I'm
New to Alopecia World, and I've had alopecia universalis for I think around 6 years. Just recently, I noticed how the Bible depicts bald women, and it is kind of getting to me. I know that God still loves me and he judges the heart, not the body. The thing is, I stopped wearing wigs this year, because I feel that it is not me. I'm going into highschool this year and it's going to be difficult to explain (unnecessary detail). Is it necessary to wear a wig? Because (no offense to you, I believe it's your choice about this) I think that wearing wigs is more of a lie and it can get you into more trouble than it is worth. God made me this way, and if he wants me to have hair, he can give me hair. But I think the that people who do not grow hair for reasons God gave them, they are not shameful. No, I did not shave my hair, it fell out. Not by choice, so I think that's proof that God made me this way, and if he wants to change me, than so be it.

Comment by Jeff on April 8, 2017 at 7:31pm

Hey there, I'm new to Alopecia World, but have been dealing with AA for 2 years now. It's been an incredibly humbling experience, as I've struggled to live with it and still find the courage to do my job. 

I've been a Christian for 40 years, have served as a youth and worship pastor and am currently serving the Lord as a missionary (10 years now).

I've found that the AA has taught me to be grateful for what I do have and to be mindful of the needs of others. I serve as the Spiritual Director for a ministry that cares for over 5,000 orphans and destitute children in 5 countries world-wide. The AA has taken its toll on my courage to speak in public, but recently I've been empowered to just do it and worry less about what the world thinks.

To those on this site struggling with AA or AT or AU, I'm praying for you and for those who find themselves struggling with this burden. God loves you and has a purpose for your life. No matter what circumstance, He is who He says He is and He will do what He promises He will do. He is faithful.

God bless you today.  

Comment by Larry Barbee on December 3, 2016 at 12:38am

Welcome to the group.

Comment by sallylwess on December 2, 2016 at 8:16pm

I didn't know this site was here.  I also am a Christian diagnosed with LPP/FFA.  I am 71 years old.  God has taken me on quite a journey of faith over the last six years of my life.  It is good to have others with us on that journey.  

Comment by CurlyK on August 4, 2016 at 7:09pm

Hi everyone. I'm fairly new on this site as I've just been diagnosed with frontal fibrosing alopecia within the past month. Am also a member of the FFA group on here. It's been a blessing to find this website with others who completely understand the heartache and frustration with this disease. I've been a Christian for 41 of my 46 years of life. I joke with my family that yes, God knows the number of hairs on my head... its just easier for Him to keep track of now. ;)

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