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Comment by Bluebird on November 10, 2009 at 1:36pm

I had the same pain this summer, and it just started again. It feels like someone is pulling my hair out, and if I try to part it different, it hurts even more. I was walking round with a bag of frozen peas on my head a lot this summer. I thought I was the only one, it seemed that scalp pain was associated more with other types of alopecia. So I was very confused. It seems to correspond to more hair loss with me too.

Comment by Marie on November 10, 2009 at 3:20am

I know exactly what you are talking about. ilthough It doesn't happen for extended periods of time or always in the same place, it does hurt in that weird way you described. I have no idea what it is. I've never had long hair and currently my hair is buzzed to about 1/4 inch, so I don't know if it's worse with long hair. Sorry I can only sympathize.

Comment by Angela on November 10, 2009 at 12:11am

Does anyone ever experience actual pain on their scalps? I get pain, which feels like my hair actually hurts at the roots, on the top of my head sometimes. It feels as though my hair is being pulled to the wrong side if that makes any sense..i've tried multiple ways at parting it, but it still seems to hurt.

Comment by Tawny on November 8, 2009 at 10:36am

oh cool! Thanks Marie!

Comment by Marie on November 7, 2009 at 10:10pm

Tawny -- I just went swimming (actually snorkeling) in just a regular Noriko wig. I wore a "Scuba Do Rag" wit it. http://www.scubadorag.com/cart/index.php?main_page=index&cPath=1_2 I love them; they are very hip and very functional.

Comment by LA on November 7, 2009 at 9:10am

Wow! The positive energy is fabulous! I have spent so much time mourning hair loss, but the solution-focussed attitudes here have me feeling so much better. I dance ballroom and latin and had a horrific vision of myself being dipped and my wig falling off! Now I see that when the time comes and a wig is the way to go, I can keep up all my regular activities! Now it's just sorting out all of the other health stuff that seems to accompany this hair loss! Thanks for the information and the positive outlook! Helps wonders!

Comment by Tawny on November 6, 2009 at 9:55am

I have to chime in with Marie again... wigs are addictive! I have one "good" one (superior quality) and a couple of cheaper ones that are fun. As you can see, my first wig is a very short style. I can't wait to get longer ones that I can play with and feel that much more feminine in! I haven't had long hair for eons and now I can!! I buzz my hair too and it really helps keep the wigs in place - I call it velcro head ;)
Angela, there are plenty of wig websites out there, just google "wigs". Someone on this site directed me to www.wigsupport.com and it's a forum with a plethora of information and discussion on wigs. A lady on there sells wigs and she posts pictures of the actual wigs. I haven't dealt with her yet, but there are is a ton of positive feedback and comments from the people on the site who get their wigs from her. I love the site.
I think someone else posted another wig website/forum that sounds very similar to this and I'm sure there are plenty others out there.
Happy "shopping"!!! :)

Marie... what kind of wig do you have to go swimming in? I need one! :)

Comment by Angela on November 5, 2009 at 3:20pm

Marie,
thank you for that post! You answered so many questions I've had. Where do you get your wigs from? Obviously if/when the time comes that I need one I will try some on somewhere, but do you know of any sites that I can at least look at styles?

Comment by Marie on November 5, 2009 at 3:06pm

As almost everyone on this site knows, I have become a wig addict. After a couple of years of obsessing and trying unsuccessful treatments, I let my hair go and buzzed it to within 1/2 inch of my scalp. I really wanted to start living again! Now my wigs have surpassed shoes as my favorite accessory. If you purchase a human hair wig, it can be styled with hot rollers, blow dryers, flat irons, etc. But synthetic wigs will get fried by high temperatures. But, most people don't realize that to a certain extent you can actually style a synthetic wig with styling tools. The only rule is to make sure you keep the hair fibers wet and use an adjustable heat flat iron or curler on the lowest heat setting. The easiest way to achieve different styles, however, is to just get multiple wigs! :-) I like to use styling gels, palmade, etc. to achieve messy "bed head" looks occasionally and that's perfectly OK with synthetic wigs. Just get something water based so it comes out easily when you shampoo it. From my experience, you can definitely have sex in a wig (my goodness, I've gone swimming, sailing, and skiing in a wig!). But, I'd recommend one thing: if you still have some hair, sew small "toupee" clips in the very front of the wig and at the the nape. I have done this, and I can honestly say that it's NEVER come off or even shifted during the most "energetic" intimate moments.

Comment by Angela on November 5, 2009 at 2:49am

Hii! I just joined this community, but I can already tell I will love this site. I was just diagnosed in May and I still look like I have a full head of hair, but I don't. My hair is half the thickness of what it used to be. I don't want to end up with my scalp showing through. I obsess about this. What does everyone use as the best treatment? Can you still style your hair with a wig? Can you wear it up? Can you have sex wearing one?! I'm soo scared of where this will go..

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