Comment

Comment by CSue on October 11, 2008 at 12:25am

Laurie, how do they take a biopsy? Did you go to a dermatologist for that? I don't have an official diagnosis yet, so I guess I'll try to make an appointment before the end of the year.

Vicky, like you, I think I'm starting to lose some hair on the sides, too.

Have any of you experienced hair loss elsewhere? I used to have a lot of hair on my arms but it vanished almost overnight years ago; however, I wasn't concerned about it. As a female, hairy arms isn't exactly a desireable trait! I stopped shaving my legs in my 30's because I no longer needed to. Anyway, I was wondering if this is normal for FPB or unrelated or does it indicate that my hairloss is something other than FPB?

Comment by Laurie on October 10, 2008 at 2:27pm

I meant 'even if my hair does come back'

Comment by Laurie on October 10, 2008 at 2:26pm

Well ladies, my biopsy results show no AGA or TE; only alot of hairs in the growing phase. My derm says the telogen effluvium is resolving. However, I'm a skeptic. I still lose what seems like too much hair to me. I guess I'll keep my fingers crossed and 'wait and see'. My endocrinologist also did not find anything either. I'm still going to remain in this group though even if my hair doesn't come back. My mother-in-law has FPB and I have a greater appreciation for hair loss now.

Comment by SylviaBonin2008 on October 9, 2008 at 9:13am

hmmm...
at the moment, i really feel so bad,
and the "lack of hair" on top of my head´s getting more-and-more
visible.. doesn´t help to comb my longer front-to-ponytail-hair above it to cover.. it just looks and feels messy.. help needed..
should i really cut it?

sylvia

Comment by emily on October 8, 2008 at 2:12am

i do know a woman who lost her hair, it just started vanishing above her ears and her hairline at her nape sort of disappeared. i dont know either if its considered fpb. at this point, i think any woman who has had to not have hair, not by choice is a sister of mine. im trying to "choose" not having hair instead of it just "happening" to me. its a practice i have not perfected. one day at a time....

Comment by Vicsta on September 26, 2008 at 9:59am

Hi Emily

Hmmm it's hard for me to say which one I am - suffice to say I have lost half my hair.

Does anyone seem to lose on the sides a bit as well or are you all only losing on the top of the head? I wonder whether what I am losing on the sides is just normal hairloss.

I have gone through a whole range of coping strategies - from cutting hair shorter and dying it to shaving my head to wearing a wig and finally to wearing scarves. I am most likely to go back to wig wearing in the longer term as I want 'hair' so I can look the way I want to.

Vicky

Comment by emily on September 26, 2008 at 12:59am

hi guys! see that image there with the three girls, im sooo the one on the bottom center. glad this group exists so specifically. love to hear about how you guys work with your fpb.

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