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Comment by Beth on May 22, 2016 at 3:55pm

Hi, and welcome!
My name is Beth. My teenage daughter has androgenticalopecia. I am starting a plan of positive action to contact researchers, pharmaceutical companies, students studying dermatology, females and males with aga, and let them know we want treatments that work! I just have to figure out what kind of website I want to set up.

I will not promote specific remedies, nor will I charge money. My sole interest is keeping up interest until we have good treatments.
Stay tuned!

Comment by Beth on May 9, 2016 at 8:40pm

Thank you, Hope Hopper!
Thank you for the specifics of your treatment. Teenagers have their own agendas, so treatment, etc., has been challenging. I will keep documenting, also, because maybe we can help another woman or Teenagers!
She definitely has female pattern. I took her to many top specialists because we had to rule out other things. It is tough, but I live in hope of new treatments. Thank you very much!

Comment by Hopehopper on May 9, 2016 at 4:30pm

I hope that the Yaz does wonders for her. My body hated it. I bled for a month with no end in sight. I went to my doctor who immediately switched me to ortho cyclen, and I have not had issues since. Fingers crossed for your daughter, because I hear its a good one for hair loss. Did they check her ferritin level? Mine was at a low of 19 and for adequate hair growth it needs to be between 50 and 70. I think going aggressively has helped me the most. Getting my level back up to the fifties, taking 100 mg. of spiro, less stress, no calorie restriction, and hormone control thru birth control. I also take something over the counter called FOOD grade diatomaceous earth. It has tons of silica in it, which our hair needs. I also take a chewable probiotic and make sure that my gut is in check if you know what I mean. So, yes, I take all of these things everyday, I am so happy that I made the commitment, because now I feel like my life is getting back to normal. I never thought I would ever have to worry about hair loss, because I had such great full hair, well, I am now a firm believer that nobody is safe. I don't even have a family history of hair loss. My own Father has all of his hair, with maybe 5 to 10 gray hairs, and he is almost 55. My Mother just went through a bad spout of hair loss, last year but she was very sick, so its probably bc her colon couldn't process foods like it use to. I have begged her to get her ferritin checked, but since her hair is growing back without any help now, she isn't worried about it. So anyways, if your daughter has very heavy periods, don't eat much foods with iron in it, I think low ferritin coupled with other things such as high stress, can make your hair fall out. Did she have a huge shed? Did they do a biopsy? I am sorry she is going through this, I know it sucks and is extremely hard to deal with. You are a good Mom to be so concerned about her and this journey that she is on!! Two thumbs up for you Beth!!

Comment by Beth on May 9, 2016 at 1:02am

Thank you Hope Hopper,
My daughter has been doing 5% rogaine foam, but now we are going to add yaz bcp. I am glad your hair grew back. Wonder if it was the spironolactone. Are you still on the same pill regiment? Thanks!

Comment by Hopehopper on May 8, 2016 at 2:41pm

Hi!

I am not sure that I have shared my experience on here. I can remember a time that I was spending countless hours on the web researching, commenting, and reading about what has happened to other women regarding hair loss. Wondering  if things would get better or just stay the same, or worse. My low point drove me to shaving all of my hair off and just getting a wig. My hair was litterally raining out for almost 6 months. I just felt like my hair was so thing and ugly it had to go! I remember feeling stubborn saying that since half of my hair jumped ship, that I didn't want the rest who actually stuck around for me. I kept my hair shaved down for four months and then decided to regrow it to see if things had improved. And in those four months I started spiro, ortho-cyclen, and iron supplements. I am happy to say that at least 80 percent of my hair has grown back in. My part is tight and scalp is covered. I am in the awkard growing out a pixie stage, heading into my 8th month of growing it out. I still cringe a bit when I see a hair or two that makes its way down my arm. However, I know that my hair is finally in a normal stage of falling out instead of the horrible bout of TE I had, that ultimately revealed early aga thru a biopsy that was performed. My advice to females is get your ferritin levels checked. I think my low iron, coupled with major stress, plus being on a low calorie diet really just through my hair into a mess. I understand the feeling of being hopless just trying to read any and every hair victory out there, I can honestly say as of today, things have surely improved for me. Best wishes to all and if I can help in any way, please don't hesitate to let me know. 

Comment by Beth on May 8, 2016 at 12:18am

Hello, Ladies,

I will continue to add my comments and thoughts, even if we only get sporadic contributors!

I am very interested in treatments for my daughter. To that end I am going to start another website or blog regarding Female Pattern Baldness. I believe there will one day be treatment, but we must be proactive now. Of course, self acceptance is BEST option, but, I envision a time where treatment may be common place. 
So, let's keep checking in, no matter what our status is, because there are many women who need comfort and support when faced with fpb. Thank you, Ladies!

Comment by Beth on May 3, 2016 at 10:45pm

Hello to any newcomers to Fpb. I will check in periodically. If anyone needstill a terrific support network, you can private message me. I also know some great youtube videos to refer people to that will cheer you up, perhaps. Best wishes

Comment by Kate on April 13, 2016 at 12:21am

You can swim in Dermmatch. The coloring stays on the scalp. But it doesn't provide fullness to the hairshaft. Depending on your hair texture and how thin it is, it may or may not be noticeable. You can test in the shower.

When I swim for recreation, I usually bring a nice sunhat and keep it near the pool to pop on when I am not in the water, and tell myself that wet hair on most people looks thin and just ignore it. When I have snorkeled or participated in water sports, I will wear a bandanna on my head (underwater even) and explain I like to keep my hair out of my eyes, mouth, face, etc. It keeps it looking cute, I keep extra dry ones and swap out a wet/dry one when I am not in the water, and it prevents scalp sunburning (and risk of skin cancer).

Comment by Beth on April 7, 2016 at 2:10am

Hi Ladies,
I am going to keep this "discussion"alive by commenting at least every other week. I know there are more women with Fpb that will need support.
I am closely following the successful and happy news that our AU, AT, AA friends are having with jak inhibitors!! Truly excited that they are learning more about their condition.

I read that one drug company will test it for androgeneticalopecia down the road, the Topical form.

Comment by Snowy on March 29, 2016 at 6:28am

Sorry Beth, I'm new to all of this.
I thought there might be a way of sending a direct message...

Thanks for the info tho'...I will chase it up for sure.

I'm meeting the Freedom Wig rep next week to check out the product and any further advice etc.

Let me know if anyone would like a review of what I see/touch/feel etc...

Thank you again, I will follow up on your direction Beth.

Snowy

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