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Comment by ResearchAcrossAmerica on March 10, 2016 at 3:38pm

Research Across America is conducting a medical research study for those suffering from Androgenetic Alopecia (Male Pattern Baldness). This is the most common form of alopecia. This research study compensates for time and travel. If you live in the Dallas/ Plano, Texas area and are interested in this research study please call 972-4-DOCTOR or visit: www.researchacrossamerica.com/hairloss for more information.

Comment by Beth on February 27, 2016 at 6:09pm

My daughter is a teenager and has been diagnosed with androgenetic alopecia. She is holding up well, living her life as normal. I am coping by trying to find treatment. She's on Rogaine 5%, 1x a day. Dermatologist said go on yaz bcp, so we may add that. I hesitate to load her up with drugs like bcp, spiro, etc. She is such a happy, level headed fun loving girl.

Comment by emsy on May 18, 2015 at 2:41am

So I was diagnosed with the same as Alpine, last year after a dermo appointment and a scalp biopsy.  I am 36.  I have always had too much hair that was the comment of every hairdresser to me so I actually have to pinch myself that this has happened to me!!  I would say I have lost 50-60% of the thickness of my hair at this point in time.

The upsetting thing was to be told by the dermo, this is what you have, put minodoxil 5% on your head  and come and see me in six months. No explaination, sympthy or suggestions of how to cope. A the time i was completely panicked and crying a lot. Then I came on here and read that I need to do my own research and start looking into why.

I got an appointment (took 6 months!) with a highly regarded endocrinogist and it sounds like she backs my view that what caused the onset of this was a change in pill. I was on yasmin and because of breakthrough bleeding I went on Noramin1. it was after a couple of months of being on Noramin1 that I was realising my hair was shedding but not growing back.

I hate hate hate the feeling of ants crawling around inside my scalp and sometimes it is actually achey and painful. 

I am quite scared and sad but I guess it is not a disease I am dying from so for that I'm grateful.

My 'plan' is to continue down the endo path and see if there is anything she can do. I will also try and make a plan of how to cope. For example I love style and clothes and I want to try and find a way that I won't have to give up feeling like I won't ever feel stylish or feel great or femanine again. I am scared for a lot of reasons.  I have gone back on the pill and as I said I'm 36. That worries me. I also am sporty and live in a hot country. The idea of a wig feels me with dread. I am unmarried, what effect will losing my hair have on my relationship. And even on my career? I worry I won't be confident in the workplace. I have suffered with depression before and worry that this will cause me to slip down.

I guess I will try and focus I guess on what I can control. I want to be strong and open with the people around me. I pray I can manage this.

It's nice to know others who can relate are out there.

Comment by Lexi on May 16, 2015 at 6:12pm

me, I am just getting thinner and thinner all the time.  It just sucks

Comment by Kate on May 16, 2015 at 3:45pm

Hi all. Nice to see action on this board. :) I am still around, although I check in here infrequently. I still use DermMatch (https://www.dermmatch.com/) and highly recommend it. I am glad that I did not choose chemical or medical treatments, as I am currently 5-months pregnant with my first baby and working on having a healthy, chemical-free pregnancy. I think a healthy babe beats a healthy head of hair any day! Hope this finds all of you well. Hang in there. 

Comment by Caligrl on May 16, 2015 at 3:34pm

Welcome Alpine! It's great that you are being proactive. I tried Rogaine a long time ago but wasn't impressed with the results. I really hope it works well for you. I was low on iron too when I was diagnosed. I still keep an eye on my iron still. Again, welcome to this group!

Comment by Sandra on May 16, 2015 at 2:27pm

I used regaine years ago and it made everything worse. It seemed to change the structure of my hair and seemed to fall out more. It also put weight on me. It took awhile to realize that but after researching I found that it does have that potential as it has blood pressure medication in it. I would never recommend it..

Comment by alpine on May 16, 2015 at 1:30pm

Hi everyone! I was just correctly diagnosed today, with both telogen effluvium and the very early stages of female pattern genetic hair loss. I will be trying women's Rogaine (5%, once a day), and I will provide an update in 6 months. I also have low ferritin and will be on iron supplements.

It was a bit of a shock to get this diagnosis, but I am dealing with it as best as I can - by reaching out to others here, for example. Thanks for your support in advance :)

Comment by Tyler17 on April 29, 2015 at 12:04am

Comment by Grace on November 2, 2014 at 2:14am

hi all. People still here and checking in? I'm new to the site and hoping to share stories and learn what I can. I have FPB and have been completely freaking out for the last year or so. Now I'm more about acceptance and trying to get excited about my options. 

I decided against meds, including rogain. I just wasn't crazy about the chemicals, and wasn't impressed with the results I was reading about. I do have a laser cap (I figured it probably can't hurt, but I also don't think it has helped.) And i am on bioidentical hormone replacement. Kind of controversial area but my doctor suggested it, and after researching it, I decided to do it.

I'm curious about your experience with Toppik. I bought some a few months ago, tried it, was underwhelmed and tossed it. But I keep reading that others have luck with it. Was I applying it wrong? Is there a secret I don't know about?

I read Katie's post about DermMatch. Katie if you're still out here - how are you, and do you still use it? Is it different than Toppik?

Sorry, kind of rambling a lot. I'm just happy to have found this place and hoping to learn a thing or two. 

 

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