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Comment by Caligrl on August 18, 2014 at 7:12pm

Hi 23311.  I have the same diagnosis but I have had it since I was 16 years old.  So I have been dealing with it for a while.  I'd be glad to be a support!

Comment by Caligrl on August 1, 2013 at 2:45pm

Thanks for the led on Dermatch. I'll have to try it out too. Sounds great. In regards to the pregnancy issues...I was extremely anxious about hair loss during and after pregnancy. So much so that I put off having any children for more than 8 years. When I finally had my first child my hair grew well during pregnancy. However, there was a massive shed in the months afterwards. This is normal due to hormones but it was worse due to the AGA. The good thing is that there was so much joy with a new baby that the hair loss was not a focus. I kinda wish now that I had been able to overcome my fears and anxiety about it a long time ago. However it is a real fear and reality but something that we can get through with a supportive network. Everyday I remind myself that there are people with much worse and painful conditions than mine. I try not to minimize the heartbreak I have felt over the years while at the same time acknowledging that it could be much worse.

Comment by Kate on August 1, 2013 at 1:34pm

Caligirl - I share your same thoughts and alternative path. I considered Rogaine but would like to start a family and am concerned about its use during pregnancy. In addition, I understand that once Rogaine use is stopped, all regrowth and temporarily-paused hair loss picks back up, and I did not want the stress of a massive shed as I prepared to conceive. So I have also found an alternative.

I like to use Dermatch. I call it my head paint. It's a powder compact that I can apply with a little bit of water straight to my scalp. It sticks to the skin through sweat, swimming pool, brushing, etc. It colors my scalp the same color as my hair, so you don't see the thin areas nearly as prominently. I also have curly hair so I can usually fluff my curls up a bit and it provides a nice camouflage. After a bit of practice, I have figure out how to apply the product in only a few minutes each morning with minimal mess. I feel more confident and this is a wonderful in-between solution until I loose enough hair to warrant shaving my head.

I think the number one focus for those of us with hair loss should be finding acceptance (since there is no cure). After acceptance, these short term, risk-free solutions are a great way to boost confidence and ride out the slow process of hair thinning. Happy to share more if interested. Reach out to me.

Comment by Caligrl on August 1, 2013 at 1:20pm

I tried the Rogaine thing a long time ago. I didn't see much difference. I used it for about a year. At the time it was a new product and expensive. I was also concerned that it could not be used during pregnancy. I gave up on it myself. About two years ago I started using Toppik. It does not grow hair back but it helps to cover and protect my scalp. My hair loss is less obvious and I feel better when I use it. It took a little but to learn how to apply it correctly but now it is just part of my morning routine. My hair loss began when I was 16 and I am now 39. It gets easier but everyday is a struggle. It's nice to know that there are others out there facing the same issues.

Comment by Kirsten on August 1, 2013 at 2:50am

I get both but I don't do anything specific to treat them. I asked my GP, Derm and Endocrinologist what they were and none of them knew.

Comment by Jennah on July 31, 2013 at 10:48pm

thanks Renee. Yes I do think I am getting a little regrowth, but very little at this stage. The other thing I wanted to ask people here is . Do you guys get a lot of itching and any scalp pain. The scalp pain for me comes and goes and I get these sore patches. The itching sometimes is really bad but other times less so. What are other peoples experiences round these two things? and do you do anything to try and combat these issues? I would appreciate any feedback guys :) cheers

Comment by Renee on June 20, 2013 at 11:52pm

Hi Jennah,
I have been using Rogaine (the men's foam 5%)forabout 4 years. My hair loss got much worse within the past year and I have no idea if the Rogaine is still working. During the first year or 2, I think that it did slow down the hair loss and perhaps resulted in a bit of regrowth.
Renee

Comment by Jennah on June 18, 2013 at 3:20am

Hi just wondering if anyone here has had any success with Rogaine?

Comment by Larry Barbee on January 10, 2013 at 8:08pm

Hi everyone,
I've been away for some time and I just wanted to let my friends in the group know I'm back.
God bless,
Larry

Comment by HBLady on May 27, 2012 at 4:27pm

Hi, all. Happy Memorial Day weekend! Thanks to those of you who posted to let me know you're still here. It's a REALLY big comfort knowing others are out there who have similar feelings as mine. So many of my friends tell me they don't see my hair loss and I'm "so beautiful" that it's not an issue. It's just great knowing people here understand the strong feelings and frustrations generated by hair loss. Just got my hair cut Friday and I look a little "butch" now. I have a concert next week and I'm feeling nervous about being in front of people not completely comfortable with my image, but it is what it is. Someone on this site asked me last week how I feel about it, and I realized that I feel a loss of control. I am overweight, but I feel I DO have power over that (eat less, exercise more - see results). Nothing I do gives me any control over my hair loss - that's the worst part of it. Sorry for going on about it, but I guess I needed to spill! Best to you all. Pam

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