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Comment by Tiffany P on May 26, 2012 at 5:03pm

Its been forever since i have logged in and had anything to say mainly because i am still trying to find solutions and move on with my life. i still read the blogs and look at the beautiful pictures that are posted but dont always find the need to log on. this place has helped me to realize there is a life after hairloss but it is still hard at times. hope all is well with everyone :o)

Comment by Kate on May 14, 2012 at 12:00am

Hi HBLady - Glad you have joined us. This group has been quiet, but I still stop in from time to time. When I first became aware of my FPB it was a very upsetting time. When I found this site I spent maybe a month super active reading forums and chatting with other members and looking at photos and getting all the info and support I could find. Finding this community really helped me find a peace and comfort with my hair situation. Since that time, I have been less drawn to log in and start discussions, because life feels so much more normal and better now that I know I am not alone (and that is a great thing!). I have a feeling that my participation with the site is something many others go through as well. So, in summary, we are not gone but perhaps many of us are feeling more comfortable with ourselves and therefore less engaged online. That said, you should ALWAYS feel free to start discussions and reach out. That is what we are all here for, even if it's quiet lately. Welcome!

Comment by LilyBell*Murphy'sLawLuvsMe on May 13, 2012 at 9:34pm

HBlady a topper may be a good option - they sell them with clip and there is a topper group on here and the lady who started it is VERY knowledgable about toppers and wigs. Also get a scalp biopsy to confirm your diagnosis - I had two and both were painless and TINY - like one stitch to close. I think Doxy is an anitbotic but I could be wrong -

Comment by HBLady on May 13, 2012 at 9:15pm

Hi. I'm new to this site and so far I seem to feel the most connection with this group. I haven't been diagnosed with FPB - I'm simply an old Black woman (heh!). But I do have little bald spots that have gotten worse on the top of my head over the past few years (and yes, lots of stress during that time - divorced and my mom died, etc.). Since I haven't seen a post here since January, I'm wondering if any of you are still visiting, or if you're off happily sporting your new wigs? Would love to hear if anyone tried the malaria drug Doxycycline (although it might be a scarring alopecia drug, which is what I think I have). Pam

Comment by Amy on January 26, 2012 at 8:23pm

SO TRUE!!! I think that putting too much focus on it makes it bigger and can take over your life. I have started exercising very regularly and do yoga. I focus on what makes me feel peace and happiness...my children,our beautiful world, gardening, etc. I still have my bad days where I think life sucks but they are few and far between now that I have taken the focus off my hair and just enjoying life and the joys it can bring. I go to a gym and used to be so worried about what people would think, so I would never go and was a hermit for so long. Now I have a beautifully toned body by going to classes at the gym and I just went skiing last week.The mountains were amazing!!! I want to be the best me I can be with or without hair :)

Comment by Marie on January 26, 2012 at 8:03pm

I couldn't agree more with Kate. Well said. Rather than hair growth, I think inner peace ought to be the goal.

Comment by Amy on January 26, 2012 at 7:59pm

I think that with certain meds you really have to see if the proposed gain is worth all of the side effects. I have low blood pressure so the 100mg of spiro really gave me more issues to deal with on top of the hair still falling out. I was on it for 1 1/2 yrs and really didn't see any significant growth or stopping of the shedding. I am the type of person that really wanted to believe that there was a magic pill or shampoo, whatever that would take all of this away!!! Going down that path I only wasted a lot of money, disappointments and heartache when I didn't get the results I wanted. I am now on nothing but vitamins that everyone should take to be healthy and I am using a lazer that I can use in my own home. I feel safer with this because I am not ingesting anything. I don't know if it is working, the shedding is very slowly slowing down but I try not to focus on it, haha. I know that it is easier said then done :) The only problem with meds if u have to be on them forever or once you stop all of the hair you gained falls out along with more!! I mentally can't take that anymore. I wish you the best and hope you get what you want out of it!

Comment by Kate on January 26, 2012 at 7:48pm

Jennah - I know this can be so hard, and I fully know your feeling of just wanting to be able to fix the hair loss so badly. It is painfully frustrating to feel like there are not options to fix this - I am mean, mankind has figured out how to transplants hearts and send folks to the moon - you would think we could make hair grow. But I remind myself all the time that there is currently no easy fix.

I've said this on this forum before, but I think it deserves to be said again... Everyone is different in their decisions, but for me, I am opting to stay away from chemical and medical treatments for my hair loss. After research and paying attention to personal stories offered here at Alopecia World and elsewhere, I am confident that there are no true success stories for treating androgenic alopecia or other types of alopecia. The drugs seem to do more harm and have more side effects than they do positive results.

In my experience the best treatment is finding an alternative to your own hair. For some, that's a beautiful wig, for others its scarves and accessories, and for others its shaving and going without. I think that sticking around this site and getting to know some of the beautiful confident women who have moved through this struggle themselves might be helpful for you. It certainly has been for me.

We are here for you!

Comment by Jennah on January 26, 2012 at 7:28pm

At this stage I am not sure if the spiro is helpig or not I'm just trying to persist as I want it to so badly. Any other thoughts would be apppreciated :)

Comment by Figarosmom on January 25, 2012 at 9:51am

I am only taking a small amount of spironolactone and it is cause dry scalp for me too. Not as bad as yours because the dose isn't as high, but still. Ugh. In winter it's the last thing you need. Ditto on the bathroom. ROFL. Sometimes I am like "what the heck" I don't take mine for hair loss, I take it for blood pressure. I can't take the other water pills used for BP anymore because they cause me to loose too much potassium...ah drugs. Such a pain. However, I don't do anything with minoxidil or drugs for my hair loss either. I just don't believe they are effective enough to warrant taking them. The medical community has a long way to go on this front.

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