Replies to This Discussion

Permalink Reply by Minter on January 28, 2017 at 9:32pm

Exactly! I want to look like myself again too :-(

Permalink Reply by Nancy Cowie on January 29, 2017 at 12:26am

Are there people who specialize in hair extensions for people like us?  Or do you just go to anyone that does extensions?  I don't even know where to start!!!!

Permalink Reply by Minter on January 29, 2017 at 7:03pm

I don't know either, all I know is from googling and from what has been shared here (thank you everyone)! There is a place an hour or so away from me that does extensions and wigs/hairpieces, so I've been meaning to call them for a consultation. Just so I can kind of dip my toe into this new world of helper hair and learn a bit more seeing it all in person. There is also Lucinda Ellery who does specialize in alopecia hair loss- but I am not ready to pull the trigger because of: #1 spending that kind of $$$$$ # 2 having to travel to get to their salon Maybe after I visit this other place and get more of an idea of what kind of options there are, I might decide to just go to Lucinda Ellery, I just don't know! I do know I am tired of avoiding looking in mirrors when I am out and about because I don't like the way I look. I want to be pleased with my reflection again!

Permalink Reply by Minter on February 7, 2017 at 11:29am

A quick update for a couple of things- I went to a (somewhat) local hair salon that specializes in wigs and talked to them about toppers & extensions- an option is using a clip in topper and extensions because my hair is slightly too thin on the crown for extensions, but I could get them on the sides.  I was impressed with the topper, it was light and easy to clip in and seemed like it would "stay put"  but, I would still have the problem of not having anything to cover my missing hairline and in front of the ears- so that seems like a lot of money/hassle for something that I would not be completely pleased with.  

I have though, finally! contacted lucinda ellery and am going for a consultation in a couple of weeks- I am very excited, I know I will probably fall out of the chair because of the cost, but at least I will know what my options are if I decide to go with their system.  

I have also had a visit with my dermatologist and spoke with her about completely stopping medications/injections/ointments for this FFA.  For myself, I just don't think there is any point in continuing with the treatments, to keep up the hope that it would stop this.  I could not tolerate the medications and I was never comfortable having steroids injected into my head. So I have decided I would rather put my money towards any future "helper hair" instead of doctors visits and drugs- I  will stick to having a healthier diet, using supplements and also essential oils to combat any itchiness/tenderness/redness on my scalp.  So that is that, I will give a full report after my visit with lucinda ellery! :-)

Permalink Reply by sallylwess on February 7, 2017 at 2:24pm

I personally think your decision is a good one.  I have done the same.  I no longer take any meds.  I have spent so much on toppers that don't really work that I have to save up to go to Lucinda Ellery.  I so hope this is a solution for you.  My best...

Permalink Reply by Airam-FFA on February 7, 2017 at 2:33pm

I look forward to reading how you get on with your appointment at the Luncinda Ellery Salon. I have emailed them but think that I missed their return call.

I think you are right about not continuing with all the treatment, due to side effects etc. I have reached the same conclusion. Diet and natural products are the way forward for me plus trying to keep a more positive mindset (easier said than done, though.

xOx

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