Hello fellow FFA suffers

Sigh, the tops of my thighs are irritated.  I can't wear jeans/pants because of the prickly feeling on my thighs. Anything tight fitting. Just like on my head when I wear a hat.  Maybe I am losing hair there?  It's hard to tell as I am fair.

I think I am still in active hair loss as I still have a itchy scalp and eyebrows but just wondered if others that have had hair loss elsewhere got this feeling as well.

:/

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Sadly, yes. I had itchy thighs and arms for a few years...it's mostly subsided now. I also would occasionally have a fine rash on my thighs. And I now have no hair on my upper legs and upper arms. Crazy!

The hits just keep on coming hey Murphy?!  

Ironic I'm losing hair were I have never had to shave and not lower on my leg where I do.  Typical!

I am itchy underneath my arms especially. Can't wear any deodorant at all.

Oh no Christi Q, that would be very annoying :(

I have noticed over the past few weeks that my arms and legs are itchy after a shower/bath. It goes after an hour or so. I have always had very little hair on my upper legs and my arms - now it is non-existant. Only hair on lower legs - now much sparser and finer - I had put this down to using and epilator for hair removal but now wonder if the FFA has caused the lower leg hairs to weaken.

The hair on my head seems to be diminishing more rapidly since I started to use Dermovate a few weeks ago. :(

Not happy times. :(

And of course I would not mine losing hair on my lower legs where I shave but nooooo FFA won't have any of that! Grrrr

I am sorry your hair loss is worse on Dermovate.  Perhaps search or post re this?  I have not used it so not sure if that is common or not.  

I do think I have lost some more hair as well on my head so am thinking about giving up the meds anyway if they seem to be doing nothing anyway.  

Yep it sucks alright :(

I agree - the meds seem to be pretty ineffective and have too many potential side effects :/

It's a tough one I guess. I go to my derm looking for answers.  She can't give me definitive ones so suggests things that "may work"..... but there is no tried and true results to fall back on.  Maybe it's a natural progression for all of us?  Give it a go until we get to some acceptance.... and then just let it go. Who knows?

I saw a different consultant on Thursday - I left feeling more dejected than before. I wanted to be referred for a second opinion and he refused, saying that all hospitals would be treating patients with the same medication! I'm not convinced that this is the case. I actually don't think that the dermatologists communicate with each other a great deal, if at all. None of the specialists in my area have heard about the research that is being done at Guy's in London - this astounds me as surely it is in everyone's interest that knowledge is shared.

:(

Really?  How disappointing.  Fancy saying every doctor does the same thing, not true.  Is there another way to get a referral to someone else?  That is very frustrating.

:(

I have also had this. Thighs were affected about 5-6 years ago, then it was abdomen and breasts. I would scratch till I bled. It was an itch that felt deep in the tissue. It wasn't until the frontal hair loss occurred at hat I connected a full loss of hair over my whole body.

I stil have most of my hair in scalp and about 1 inch loss in front. All these years I associated body hair loss with a reaction to the stun because that is when the itchiness would begin and then would subside after about 4 months and continued sun exposure. I spend my summers at the beach since I work for the school system .

Anyhow, now I'm wondering if my scalp will be next.

So scary.

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