Replies to This Discussion

Permalink Reply by LVL on April 7, 2017 at 11:22am

Hi Dragon & Fox. I experienced a small burning/throbbing pain on my hairline a week ago for a few days where it is receding the worst. I also read that means that the follicles are scarring over. I've read that FFA can be itchy and painful. I understand where you're coming from. It's very scary and stressful. I'm only 33. Not that it matters what age you are when you lose your hair. It's heartbreaking at any age. Hopefully your doctor can find something to help with his study

Permalink Reply by Minter on April 8, 2017 at 3:46am

That burning feeling must've had something to do with the acupuncture? That could not have been pleasant at all to deal with Dragon&Fox, it sounds just awful.  I do agree with you about hair keeping one looking good, sigh, never knew what I had when I had it.  

What kind of study is your doctor in NYC doing? If she needs subjects I am willing! 

LVL,  I too am sorry you have this at such a young age, this is not a group that you want to join, ever- especially when you are young.

 

I don't think I've ever gotten any real "burning" sensation?  or pain?  I do have the itching though, mostly on my crown and the back & side of my hairline and only once in a while on the front/top of my hairline- also I am not using anything at all now, no prescriptions, steroids, clobetasol, just tea tree oil on my front hairline.  Though I have noticed lately that the skin on my forehead closer to my hairline is now very thin looking- now I am wondering if using the clobetasol and getting the steroid shots has made that happen or is it just age- either way I am glad I stopped using that stuff!

Permalink Reply by Minter on April 9, 2017 at 4:39am

Oh my gosh you have been through the wars Dragon&Fox!  That scarring does not sound good at all, there must be something other then clobetasol that your doctor can prescribe to sooth your skin?

As for me, I find the  tea tree oil doesn't really burn at all, it is not like if you put peroxide on a wound or something like that where it does burn, oww!  sometimes I blend it with coconut oil at night and massage it into my hairline/scalp- it feels and smells really good!  

Thanks for the info about your doctor, looking forward to hearing more about the study, though to be honest- unless it is an absolute guaranteed cure and it would also grow my hair back ;-D I can't see myself ever, ever taking prescription meds or going down the steroid road for this FFA ever again.  

Permalink Reply by sallylwess on April 29, 2017 at 6:44pm

You are so right about hair being an important factor in giving a youthful appearance.  I am 72 years old.  Up until a few years ago I was not believed when I told people my age.  I don't think it is just the loss of hair that ages with FFA.  The skin, or at least mine, is affected.  I have not wrinkles, but I have facial papules which have developed in the last few years.  I also think that even when you add "helper hair" it does not in many cases give the same look and it tends to make one less sure of their true identity.  That has been my experience.

Permalink Reply by AnnieMay on April 26, 2017 at 2:41pm

I am still very new to FAA and my scalp has a burning sensation and is red in some spots. My dr prescribed a steroid lotion (Betamethasone Dipropionate lotion) and I've been using it for almost 3 weeks but I don't know if I should stop. Being new to this I don't know if the burning feeling is from the lotion or FAA? And maybe I'm just more aware but it seems like the white areas along my hairline are more shiny? I see my dr again in a couple of weeks. I don't know. Just feeling overwhelmed by this

Permalink Reply by sallylwess on April 29, 2017 at 6:47pm

So, is your scalp better?  Did it stop burning.  I've thought of doing acupuncture. Do you still think the scalp burning was from the acupuncture?  I can only use clobetasol solution because the other makes me break out in rashes.