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Comment by Sidney Prescott on November 5, 2018 at 7:44pm

Hi, new to this group. Have had alopecia since for 14 years now. When I was first diagnosed I tried some steroid treatments but never really stuck with them long enough to know if they would have worked. (I had bad experiences with doctors and was tired of it so I stopped). 

I am interested now in trying to treat my alopecia with diet and nutrition - from the inside out. I have recently also been diagnosed with MS ! I'm curious if there are others out there who also have MS as autoimmune diseases tend to cluster. (I've also had eczema in the past but it has seemed to improve the last few years)

Because of this new diagnosis I am feeling more ambitious in finding out what the hell is going on with my body and if there is something I can do to start fixing my immune system. I am working with a doctor right now who is prescribing me high doses of VITAMIN D. I've been doing a lot of research about this and its effect on autoimmune disorders. 

So anyway just wanted to connect - any one out there who also has multiple sclerosis or has been diagnosed with any other autoimmune conditions? Any one else taking high doses of Vitamin D? 

Comment by sunny112358 on December 29, 2017 at 2:52am

Hello is this group still active?

Comment by Ginny on August 5, 2015 at 7:16pm

My husband is a colour therapist who is also into using natural remedies. Talking to lots of people with Alopecia we have discovered that stress in it's many forms is a factor in setting off alopecia? What have you found?

Comment by Debs on August 20, 2014 at 9:35am

I have been using an antiinflammatory diet and supplements; turmeric, ginger, high dose fish oils, a muilti vitamin/mineral. I exercise 3 times a week. I have started seeing a nedical herbalist, she makes a tincture specifically for me based on my needs, very different to conventional medicine and a relief to be listened to, I am trying to reduce the inflammation in my body so I dont develop more auto immune conditions. I am starting a meditation course in Sept to help manage stress.

Comment by Niece on March 23, 2014 at 12:24am

I agree with Angie...there is nothing out there that will help us grow our hair back. If and when the body reverts back to not seeing hair follicles as foreign your hair will start to grow and if they dont you wont be able to change that fact.  Maybe someday they will come up with something to cure this disease...wish it would be in my life time!

Comment by Liz on November 8, 2013 at 10:25am

Mayo! I'm so sorry I've been out of touch for a while. I'm going through a rough time right now. Lots of personal stress. I've read your posts about GAPS and leaky gut. The driver for my leaky gut (sounds lovely) is Lyme and co-infections. My dark hair is continuing to grow and change. My entire head is not filled in yet. It's a very slow process. I'll send healing thoughts to your daughter :-) My e-mail is neilizzy@gmail.com

Comment by Mayo on September 29, 2013 at 7:16am

Hi liz. Would you mind if I emailed you too? My daughter has AA (She's 2&1/2) and I know I can get past this for her! If people can cure themselves of multiple sclerosis (a good friend of mine has) and autism etc... We can cure ourselves from this auto immune disease. I would also like to ask you a bit more about heavy metal toxicity testing etc if that is ok? I live Australia though. I would also like to know how you have gone with your hair regrowth now it's a few months on. Thanks in advance
Mayo xx

Comment by Liz on June 12, 2013 at 10:14am

Hi Natalie! Would love to chat with you. My address is neilizzy@gmail.com My nephew and I both lost all of our hair within 8 months of each other. Crazy!

Comment by Liz on June 12, 2013 at 10:12am

Comment by N on June 11, 2013 at 12:56pm

Hi liz. I would love to chat with you about testing. What is your email?? Thanks- natalie

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