I noticed that a couple of people who have been recently diagnosed are asking the question "what happens next?" The following is from the National Institute of Arthritis and Musculoskeletal and Skin Diseases - National Institutes of Health and you can find the full 28 page Q&A brochure here.

"What Can I Expect Next?
The course of alopecia areata is highly unpredictable, and the uncertainty of what will happen next is probably the most difficult and frustrating aspect of the disease. You may continue to lose hair, or your hair loss may stop. The hair you have lost may or may not grow back, and you may or may not continue to develop new bare patches."


I am very aware and remember that this is not what we want to hear, but sometimes the straight answer is the easiet way for us to cope and move on while we wait and see what fate alopecia has for us. If you have questions, please post them as new discussion and then our member will be able to see ans answer them.

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Replies to This Discussion

When do you know it is time to shave your head? I really do not want to have a bunch of bald spots showing...I have stopped getting treatment and my hair has gotten worse. The thing is that noone can tell but me! My hair is all falling out in the back behind my other hair. It started out just in patches and now most of the hair in the back of my head is gone. You cannot tell when my hair is down though. However, the other hair around my hair is starting to thin out. I have talked to a couple people about just shaving it, but they do not see why because they cant tell unless I put my hair up. The thing of it is I am so tired of feeling out of control and finding new spots and parts thinning. Part of me just wants to shave my head, but I do not want my family to think I just gave up! Plus it is really hard because I am single, uhhh...This is just so emotional. One minute I am fine....the next I realize another part of my hair is thinning and I start crying again. What should I do?
Hi Allison, my hair took the same turn of events and I got tired too. What happens next is that I just kind of ignored the patterns of growth or fallage or no growth, put a scarf/bandanna on and did my daily events. I've been having alopecia for 30+ years and after seeking treatments, most I let go of and as of now decided to join a support group and buy sonme B vitamins with Biotin (which is good for hair growth). I advise everyone to go to a support group near or in their area and wear what makes you comfortable or what works for you, such as a wig, scarf/bandanna, or cap. Bit by bit you won't feel self-conscious and will go on and do your daily situations while paying attention to see if there's any growth.

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