Replies to This Discussion

Permalink Reply by sam on January 1, 2013 at 3:33pm

Hi sorry to hear your going through such a difficult time what have written im exactly the same it's such an horrible thing to go through losing your hair,iv been emotional all over the Christmas period feels like the whole hair situation ia taking over my life im going looking at wigs next couple of weeks so there's another step of acceptance I have to go through I feel your pain

Permalink Reply by SarahW. on January 1, 2013 at 4:33pm

I lost my hair almost 2 yrs ago. Started coming out like you described, except I developed full blown universalis. I have a 2 1/2 yr old son and I cried knowing that he'll never know me with hair. He's not afraid of me and when I'm bald, which is always when I'm home he thinks nothing of it. When I wear a wig he says "mommy looks pretty". The emotional hell is something we all can relate too. Husband was supportive but he could never understand what I was going through. I lost a piece of myself when my hair fell out and I'm still trying to fill in that void. I started looking at wigs when my hair was 50% gone and that in itself was another emotional roller coaster. I wear multiple wigs now depending on my activity for the day, vacuum piece at work, regular wig at stores. If you ever need to talk please contact me. Can give u tips on different makeup and wigs and can be a stranger to help you through all the ups and downs that come with this. Good luck and stay strong.

Permalink Reply by Leenda on January 2, 2013 at 11:17am

I'm so sorry to hear about what you are going through. My son was diagnosed last March with AA and I'm so happy to announce that he has a full head of hair again. Though, I will never know what you are going thru, what I do know is that there is hope at the end of the tunnel=) Hang in there!

Permalink Reply by Fay on January 2, 2013 at 4:37pm

I felt compelled to write you because I also have been recently diagnosed with AA and I stared just like you, but it began Jan. 2012 , then stopped". Grew back and then in September 2012 it all,just came out in a matter of 3 weeks it all came out. I am a principal in an elementary school so I feel your pain. I wear scarves in all different ways. Kids asked me in the beginning why I was wearing a scarf or what happened to my hair. my response was and is "I am bald and my head is cold". They say okay and move on. I still have issues within myself but I plan to just walk into the school one day bald all the way and then wear a wig another day and so on. Telling people I am bald by saying it out loud has helped me in moving on. Losing my eyelashes and eyebrows sucks. But it is what it is.

Permalink Reply by Fay on January 2, 2013 at 4:53pm

Do not take off work talk to your principal and other team mates. You will be surprised how many in your workplace may be struggling with the same thing at different degrees.

Permalink Reply by Kteacher on January 2, 2013 at 8:35pm

Thanks so much. I'm still working as of now. I am just having a horrible time accepting this. I feel stupid for making such a big deal, I'd love to be one of those girls who says "so what! I'm not going to let this bother me at all!" But I'm not, and don't think I'll ever be able to accept it. Like I said, I'm not sad all the time, but its almost like I'm not the same anymore, inside or out and I'm scared to death of when it all comes out for good.

Permalink Reply by Angie on January 7, 2013 at 4:57pm

Don't be so hard on yourself. You have every right to be upset and depressed. I don't like when people downplay hair loss as if it's "normal." It is probably a process. As time goes by, you'll get better at dealing with it. I am all for fighting it all the way, especially since so much of it is unknown. Plenty of success stories out there, but you have to keep trying to find the source of the issue...could be stress, vitamin/mineral deficiency, poor circulation. This is a great time to make some real lifestyle changes. I don't have it, but my 5 year old son does. It started at 18 mos and I have been trying all sorts of things. It gets easier as he gets older, so that I can convince him to eat better and better.

Permalink Reply by alopeciamommy on November 1, 2014 at 1:13pm

My daughter started with AA at age 7, this past April. She thought it was cool, I on the other hand reacted as if it were me. I agree with Angie. It is a process to go through. I know it's not me personally and I have such great emotions towards my daughter's AA, there are days I am completely fine, days where I'm sad, and days where I'm so angry. I can on,y imagine as a person going through it the emotions are much greater. You have every right to feel how you do. Maybe over time you will be able to accept or just cope. Its great to have something like this website to,be able to encourage and support each other.

Permalink Reply by alopeciamommy on November 1, 2014 at 1:14pm

I accident.y replied to your post below under Angie.