Comment

Comment by Bex Weller on February 24, 2013 at 2:27pm

Cheers Diarmid (sorry if I spelt ur name wrong!)
Great to have u on board Amanda and Ashleigh!

Comment by the Diarminator lol on February 24, 2013 at 5:52am

hay Bex. If you need a hand I will help out was an advanced climber/ tower rescuer/ first aider in my old job in Ireland. So I am no stranger two rope access or abseiling.

Comment by Amanda and Ashleigh on February 24, 2013 at 3:09am

Hey Bex! Count us in:)

Comment by Bex Weller on February 23, 2013 at 5:02pm

Ok so I'm putting a thought out there and am keen for any ideas suggestions, and curious who is keen?

I'm currently looking on planning a weekend long "camp" for Alopecia sufferers in NZ! I'm thinking kids & there families & any adults who aos want to get amongst the fun! I'm envisioning games, group challenegs, obstacle course, Abseiling High Ropes etc

I'm an Outddor education Instructor (& so is my husband Karl) so I've got some great contacts here in Christchurch.

I'm currently looking at the middle or last weekend of the spring school holidays 4-6 Oct or 11-13th oct

What do u think???

Love n hugs
Bex :)

Comment by PaulJ on February 10, 2013 at 5:00pm

Update on some coffee meetings

Feb 16th - ChCH - Cafe Kudos (Annex road) from 10.30am
Feb 23rd - Auckland - Cafe one2one (Ponsonby road) from 11amm.

All are welcome

Comment by Norelle on February 1, 2013 at 3:37pm

Paul you are AWESOME setting up all these meetings for everyone!!
My house is right beside the beach in papamoa if anyone wanted to come over for a beach day while its still warm from Hamilton or any of the smaller towns surrounding rather than a coffee meet up. I have children so could be a family day?

Comment by Delilah on January 31, 2013 at 10:53pm

Thanks Paul,
Hi Kelly it looks like Amanda & Ashleigh might be of some help for you :) I've heard from the doctors that there's quite a few kids living with alopecia in CHCH since the quakes. It must be SO hard for such young ones to adapt to this condition, I really feel for them.

Comment by Kelly Denley on January 31, 2013 at 10:40pm

Hi everyone - my daughter is 9 1/2 and we live in Christchurch she is very keen to meet others around her age who also have Alopecia. Would be very interested for a catch in Christchurch. Her Alopecia has got very agressive in a short period of time and she has lost almost all of her hair - she is very comfortable with it but always asks the question why her - so it would be good that she could see its not just her.

Comment by PaulJ on January 31, 2013 at 8:04pm

Welcome Delilah and Amanda&Ashleigh !

Comment by Delilah on January 31, 2013 at 5:50pm

Hi everyone. I was diagnosed with AT almost 2 years ago I'm coming up 33 next month. I live in Taranaki & look forward to getting to know some of you. Might even be keen for a local meet if there are enough of us :)

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