Ophiasis Pattern Alopecia Group

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Ophiasis Pattern Alopecia Group

Members: 62
Latest Activity: Jun 29, 2020

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I'm cold

Started by Sunflower25. Last reply by Sassydiana Jul 6, 2015. 7 Replies

My hair loss seems to be fully in this pattern now - gone above both ears and down around the bottom of my hair line.  I'm missing about 2.5 inches from the bottom up.  I wanted to ask, does anyone…Continue

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Comment by Bananarama on February 26, 2017 at 8:28pm

By the way, today's pic is not how I wear my hair normally. I sloppilly put it up in an attempt to deliberately show all the bald patches! 

Comment by Bananarama on February 26, 2017 at 8:26pm

Hey Ross, if it helps, I've found my alopecia has gotten significantly better. It's never gone away fully, but I used to not be able to hide it very well and now I don't even think about it. So you can see, here's some links to pics. June 2013 Today (Feb 2017). I was getting steroid shots for a couple months in 2013 and I was getting brutally sick because of it, so I stopped doing that. Now I just focus on eating right, taking my vitamins, and keeping my scalp healthy. Good luck! 

Comment by RossG on February 26, 2017 at 2:17pm
Hello fellow ophies! Hope no one is offended, but i'm trying to keep a sense of humor through this. I'm still in my introduction to the world of alopecia, something I didn't even know existed until last October when the hair above my ears and back of my head began falling out. A couple of the higher up bald patches have since filled in while one patch in the back top of my head stubbornly persists. The rest of the lower part of my head remains smoothly bald with no peach fuzz. I recently read all about the anagen and telogen phases and was hopeful that my hair may return when a new anagen phase begin, which for me could be in the next few weeks. However, I have also read a few places online where Ophiasis "prognosis is poor." So, in about one hour of reading I went from feeling very optimistic to being extremely depressed. Then I found this site, and it has lifted my spirits. For many years I have been in the habit of eating very healthy, and I am fortunate to have enough spare time to spend exercising quite a bit. I mention this only to say I am not convinced a change in diet or supplements would do much for me. Currently, I do still hold out hope that I can get these hair follicles working again through positive thinking and visualization. Specifically, Jose Silva's mind control method and general meditation are two things i hope may help. Have any of you had any luck with your Ophiasis reversing, or do you know anyone who has ever had a severe Ophiasis pattern become full of hair again for any lasting time? Finally, is hair transplant by using someone else's hair even a realistic option for us? Thank you for any help you can give me. I feel the love from you guys already. :)
Comment by Dolly on April 5, 2016 at 2:36am

Low Dose Naltrexone

Comment by Lexi on April 4, 2016 at 6:44pm

what is it????

Comment by Dolly on April 4, 2016 at 7:01am

Anyone tried LDN? I read good things about it.

Comment by Maz on October 10, 2015 at 5:17am

Now I may be wrong but it seems that my scalp doesn't like grey hairs. I have become convinced that when a hair goes grey its days are numbered. Has anyone else noticed that grey hairs fall out while healthy hair stays put. Most people don't want to go grey but I'd sure rather that than bald, which is where I seem to be going. I'm 66 and I'm entitled to go grey, or so I thought.

Comment by Katniss on April 20, 2015 at 6:51pm

I had been trying not to obsess about my hair for a while so I stopped checking. But I was quite discouraged to see a chunk of my hairline missing when I put my hair up a few days ago. I hate that there's no rhyme or reason. I am shedding a ton of hair when I bathe but it seems to be coming from all over. Shrugs, who knows what's brewing up there...! Lol!

Comment by Lexi on April 20, 2015 at 6:12pm

No, my ophiasis just started on the nape of my neck.  I think when I started to shed heavily, mostly it was the nape area that probably was shedding, until I lost it all.  The back of my neck is totally absent of hair, and it is rising higher and higher also going up above my ears.  Nice, huh?  But the rest of my hair is just plain overall thinning in general.  Every day it seems, more and more lately.  Only a matter of time when wigs are going to be a requirement.  Every day. Read what Sunflower said.  Same thing. 

Comment by Katniss on April 20, 2015 at 5:06pm

How did your ophiasis pattern begin? I have previously had random spots all over my head that have come and gone. But I hadn't had any new spots crop up for months. In fact they were all growing in. But I noticed a new spot, right on the nape of my neck. Just a chunk missing and it's all stubbly which is how my loss always begins.

 

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