Replies to This Discussion

Permalink Reply by Carol on January 9, 2010 at 11:51pm

Hi Christine and Mya
I went to alopeciapalooza last year as a guest speaker and I must say it's an incredible event! The workshops were very proffesional for parents, children with alopecia and their siblings, everyone was included and it was not only informative but fun for everyone. They had a dance and karaoke even a fashion show, the food was great and this year they are doing a camp version of it. I've taken a peek at some of the pictures of the camp and it is one posh setting, not like camping at all with tons of activities available. The workshops are split into age categories and everyone can meet with others going through the exact same thing. I would deffinately recommend going if you can. Jeff and Betsy who run CAP are amazing folks as well as the guest speakers. I've had alopecia for 32 years and wish something like this had been available to me as a child, it would have made a world of difference! Hope you can make it and if you can't you can always donate to their efforts in teaching children self-esteem and confidance (see my last blog post). Take care! :)

Permalink Reply by BaldGirlsDoLunch.org on January 10, 2010 at 12:07am

I was a guest presenter this past summer ( 2009) and did an eyebrow workshop for tweens and their moms. It was so much fun to work with the girls and see them so involved and interested in understanding face and eyebrow shapes.

That evening, the fashion show was styled by model and actressMargaret Baker and we had a blast doing makeup and accessorizing for everyone.

Some photos from my beauty workshop here.

We made it fun, focused, educational, hands-on and even the moms learned new tricks for their own eyebrows.


Thea
www.BaldGirlsDoLunch.org

Permalink Reply by Sara (Ryan's mom) on January 12, 2010 at 4:15pm

I did not go to the last one, but I am considering going to the one in August. My son will be 5 then and he is starting to ask why he does not have hair. I think it will be great for him to meet other children like him. He thinks he is the only kid that has no hair. I can't wait until more information comes out about it.

Permalink Reply by BaldGirlsDoLunch.org on January 12, 2010 at 9:25pm

Hi Sara,

Have you looked at the CAP website with your son? It's just filled with photos of kids like him. They can give him a penpal, too. I like CAP because their efforts are not spread out across many things like trying to raise money for researchers...they are focused 100% on responding to families and you know that their funds are doing that.

And they will be delighted to send a collection of children's story books about kids with alopecia to his school.

Thea
www.BaldGirlsDoLunch.org

Permalink Reply by Sara (Ryan's mom) on March 17, 2010 at 11:39am

Oh Wow, that would be awesome, I did not even know they had books. I would even pay for them. He is starting Kindergarten in the fall so any help would be great. We just decided we are going in August to the Camp in Canadensis, Ryan is so excited.

Permalink Reply by Ellie on January 13, 2010 at 5:03pm

My daughter and I went last year she was 4 1/2. I thought that she needed to be around other kids like herself. I didn't realize how much it helped me as well. My daughter is already telling me that she wants to go again this year. How can I say no. CAP is a great organization.

Permalink Reply by Mya & Christine on January 16, 2010 at 11:33pm

We are excited and can't wait to go!

Permalink Reply by Ellie on February 3, 2010 at 7:52pm

We are looking forward to going this year as well. My daughter asks me at least once a day to go. We are going to have so much fun. I am trying to decide if I should take her twin brother as well. I am not sure.

Permalink Reply by Jen Deletto on February 15, 2010 at 10:35pm

We haven't gone yet but it is run by CAP (Children's Alopecia Project) and the founders are AMAZING! I am hoping to take my daughter to it in the future!!!

Permalink Reply by Jen Deletto on March 15, 2010 at 9:40pm

We are going this year! Anybody else going?

Permalink Reply by Mya & Christine on March 16, 2010 at 9:59pm

Mya and I are going! I paid for our flights and registration as soon as I got my tax refund, so I have no excuses of not making it.

Permalink Reply by Marte Carlson on March 16, 2010 at 10:39pm

Hi everyone!! I am new to this website and group. I recently found the camp information for Alopeciapalooza and I was wondering at what age can kids go to this? I have a 3yr (almost 4 by camp time) and I really want to take her but I am wondering if she would get anything out of it at this age?

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