Replies to This Discussion

Permalink Reply by Caroline Kehoe on August 24, 2009 at 8:55am

Hello there....i dont have a teenage daughter, my little girl has a permanent form of hair loss since birth so i have
researched alot into wigs. we have tried the dermalite, syntetic wigs etc but my advice would be to look into
a vacuum or suction wig as they are so secure and so realistic. my daughter has scanty patches of hair on her head which we have to keep shaved as any hair or stubble on the head would mean the vacuum wig would not form a seal.
what i love about the vacuum wig is that nobody can pull it off her head, the hair is amazing quality and while they are expensive, you should get 2 or 3 years out of it as your daughters head is fully grown.
how would she feel about taking the big step of shaving any remaining hair off? this would have to be done at your first consultation as they would need to take a plaster mould of her head to achieve a perfect fit.......if you want to look into it you can google freedom wigs or peggy knight or nu-hair......my little girl has a freedom vacuum wig but im sure they are all similar.....feel free to contact me if you have any other questions!!

Permalink Reply by Tandy Acuna on August 24, 2009 at 9:06am

Thank you for your advise. We are not at the shave whole head stage. Just trying to be proactive.
The whole unknown is the big battle right now. Last year she had 2 spots and after about 3-4 months they started to grow back on their own. This time they are significantly bigger and she is starting off with thinner hair than last year too. She flip flops between being brave and carefree and crying .....I guess that is expected.

I am thinking that another form of wig might be for someone that still has quite a bit of hair ....just losing it in spots? I do wonder if cover her existing hair with a wig will cause more natural hair to fall out?

Anone have help there?

Permalink Reply by Caroline Kehoe on August 24, 2009 at 9:15am

if she still has alot of hair and you just want to cover the spots then i would recomment a topper that can be woven into her own hair to keep it in place. you would never be able to tell the difference between her own hair and the added piece. i think they are mesh or lace based. ill see if i can find out more for you...

Permalink Reply by Tandy Acuna on August 26, 2009 at 8:16pm

I would love info on this topper idea.
Thanks for your input

Permalink Reply by Cindy on August 26, 2009 at 3:13pm

Hi Tandy, my daughter wore headbands from Claires until she lost too much. They have many different options there. Also, if your thinking about a wig the hair club for kids is great. many of the girls here have them. My 7 yr old wore it for a year. Her hair is growing back now. www.hairclub.com. They give 3 free wigs a year an 8 free services. They did a great job matching a color from pictures. Cindy

Permalink Reply by Tandy Acuna on August 26, 2009 at 8:16pm

Thank you for the advise. I was also told locks of love helps kids too. Have you heard of them?

Permalink Reply by Lisa Leppert on August 27, 2009 at 6:11am

Sorry to butt in but I have heard of Locks of Love. The kids with Alopecia are one the main sources of their recipents. Its all through donation and I believe you can wind up paying nothing for the wig depnding on your financial situation. I haven't checked into that part. Because of the vaccum you have to be 8 to get one and my little girl is only 3. I have donated to them several times myself even before I have my daughter. www.locksoflove.org.

Permalink Reply by Cindy on August 27, 2009 at 7:19am

Tandy, Locks of Love gives free suction wigs to kids based on final need. You need to get an application, doctors note, 2 letters of reference and provide a tax return. Then in a few wigs they will send you their answer. It was frustrating for me to go through as a parent. If you qualify it takes about 6 months to get.. The hair club does not make you do all that work and you get the hair in 3 months. I have met people that love the LOL wigs and some that are not thrilled. If you think you'd qualify it is definitely worth trying if your daughter is likely going to loose all of her hair. She would not be able to wear their wig if she had hair b/c it is a suction cap. Cindy

Permalink Reply by Cindy on August 26, 2009 at 3:10pm

Hi Tandy, When my daughter was loosing her hair we bought a bunch of headbands at claires that were all different widths and it worked great for her until she needed a full wig. I suggest checking out the hairclub for kids. They give 2 free hair replacements a year. A lot of the girls on here have them. My daughter liked hers. She now has a short cut and isn't wearing them, but wore them for a year. www.hairlcub.com. Good luck, Cindy

Permalink Reply by Tana on September 1, 2009 at 6:45pm

I am a 15 myself and I have been through a cheap human hair which was good at first but it isn't very natural I wouldn't go with that and I had a synthetic I loved it but they just don't last that long especially if you do sports.. Then I tried Amy's Presence which isn't bad at all it is pretty good now i am trying Hair club for kids... I would go with this it looks natural it is human hair so you can style it however you want and IT IS FREE TIL YOUR 18!!! Im actually going to go friday to get it! [:

Permalink Reply by Tandy Acuna on September 1, 2009 at 8:09pm

Very cool! My daughter is going for her fitting at Hair Club for Kids on Saturday! Ill let everyone know how it goes.
Thanks for all the input.

Good luck with your new wig Friday!

Permalink Reply by Cindy on September 8, 2009 at 8:07am

Good luck Tandy..There are many young girls on here wearing them and I haven't heard anyone say they did not like it including my own daughter..Cindy

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