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Comment by leah on June 4, 2022 at 1:11pm

Hello just want to share this webinar and series that sounds good on Alopecia. https://www.naaf.org/event/you-are-not-alone-naaf-education-and-emp...

You Are Not Alone: NAAF Education and Empowerment Webinar Series
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Thursday, June 9, 2022 - 4:00pm
Contact: Judy Williams
Email: Judy@naaf.org
Link: Register Now
"RESILIENCE, COURAGE AND CONFIDENCE"
As part of NAAF's "You Are Not Alone: NAAF Education and Empowerment Webinar Series," our first of 12 webinars will kick off with “Resilience, Courage and Confidence” featuring Shamsha Damani and Sofia Martinez. Shamsha was diagnosed with alopecia universalis since 2013 and serves as a support group leader and Health and Research Ambassador (HARA) for NAAF. Sofia is an engineer and the founder of “Oh Hell Yeah I Am,” a Life Coaching company. She has dealt with alopecia since she was 6 years old. In this webinar, you will work through the notions of resilience, courage and confidence and identify practical tools to become resilient, practice courage and develop confidence so you can start to feel good in your own skin.

4:00 PM PDT / 6:00 PM CT / 7:00 PM EDT

NAAF gratefully acknowledges support for this webinar series from Eli Lilly.

https://www.naaf.org/event/you-are-not-alone-naaf-education-and-emp...

 

Comment by leah on December 29, 2021 at 11:50am

https://www.msn.com/en-us/movies/celebrity/jada-pinkett-smith-is-em... "

Jada Pinkett Smith Is Embracing Her Hair Loss: 'Me and This Alopecia Are Going to Be Friends'" 

Jada Pinkett-Smith sharing an alopecia patch and her attitude is everything! :D Happy new year all

Comment by leah on July 30, 2021 at 2:56pm

2 more things like to share:

A) for children / parents Vancouver BC online meet, see NAAF.org and flyer 

Vancouver, BC Children's Virtual Support Meeting

Aug 14, 2021, 10:00AM PDT

B)  Save the date for Alopecia Support Group Fundraiser/event 9/25. Please see their pages and flyer too. https://www.alopeciasupportgroup.org/

Comment by leah on July 23, 2021 at 11:07pm

Comment by leah on July 23, 2021 at 11:07pm

Hello all, Hope having a good summer, I don't know of any in person meets. However, heard with NAAF.org that even out of state people can join Zoom meets. And there is one upcoming in CA 7/28 6:30pm PST. Please RSVP with the host/leader and see flyer below. Thanks

PS Here is the URL, tried to convert PDF flyer

https://www.naaf.org/sites/default/files/documents/files/7-28-2021_...

Comment by leah on August 22, 2020 at 6:48pm

Hi Bon, I am sorry missed this and didn’t have lots of time when I (finally ) connected on phone...hair stylists(/for others reference too): a) Echo
Collier
Who worked @ WilliamC. I’ve heard and seen is awesome ! http://www.design-by-echo.com/

B) Jamie Elmore founder of ASG and owner of J Salon

Has lot of experience in cosmology and is fellow alocepian (:. Her salon also has a woman who specializes in hair pieces
https://m.facebook.com/pages/J-Salon/195659210501292

C) In addition, since the first two
are in Seattle, maybe reach out to June Secreto leader for NAAF for her referral list, as sure has more and maybe north end/closer to you.

rjsecreto@comcast.net

Take care
PS May I ask if could please list that Facebook group you found to be so supportive? The International Alopecia Day, ASG and BC are good too. Thanks

Comment by Bon on July 16, 2020 at 12:36pm

Hi Everyone, I have come to a point that my hair is so thin I need the name of a hairdresser around the greater Seattle/Everett area who knows about our condition and can hopefully cut my hair so I can still wear it on occasion.  This pandemic coupled with a recent assault by a stranger and losing my hair....well it's just time to stop wearing it up and get it cut before a depression sets in.  The profile pic here was taken in I believe 2016?  I still had quite a lot of hair in 2017 but not now.  SO PLEASE PLEASE IF ANYONE CAN SUGGEST A HAIRDRESSER WHO IS FAMILIAR WITH ALOPECIA LET ME KNOW? Take good care of yourselves.  I am going to continue exercising and taking care of my general health.  Intellectually I know I am not my body or hair but they ARE mine to take the best care of I can. I wish you all some laughter, joy and gratitude during this time of challenges.  Be and stay well.  Thank you,  Bon

Comment by leah on February 22, 2020 at 3:30pm

Dear Bon, 

I am sorry for typo with my first message to you and how may have missed some of mine/delay. I have messaged you my number and been seeing if there are any scheduled upcoming WA meets without luck yet. Please call or text me. As I am not always on this site and connecting directly may be clearer and quicker.

 

I get driving not far and traffic in the area can be awful. I take public transport and Lyft etc can be more stress-free. And nice thing Sounder runs out of Everett south and area is getting better with alternatives. I have found the train, etc. to be relaxing if have time to take it.

I will be caregiving next month on weekend in Snohmish and could meet for a bit. Right now have to say tentative; as I been having some health flares and feeling over stretched.

Lastly, I will try see about if others are able /want to meet.

Comment by Bon on February 17, 2020 at 9:04pm

I would attend for sure.  I live in Everett and don't like driving long distances but I have just been diagnosed with Lichen Planopaliris. I have tried repeatedly to get a response from someone but perhaps since I'm new to this site it's me.  I am moving into acceptance through prayer, meditation, support from friends and being open about it and not always hiding it. PLEASE, someone respond to this. I'd really appreciate it.  Bon

Comment by leah on February 12, 2020 at 1:27am

PSS Bon and all who are interested :

1. NAAF has meets and local leaders for support and lists of people in WA. NAAF.org June S. rjsecreto@comcast.net
2. also checkout AlopeciaSupportGroup.org for upcoming meets /events.
3. If I hear of any will share too.

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