Comment

Comment by leah on February 12, 2020 at 12:19am

PS please excuse typos talking to my phone, no excuse after long on the way home. Thanks 

Comment by leah on February 12, 2020 at 12:18am

Hi Bob,

Thank you ! I’m sorry about diagnosis I don’t know that one and shall research. I haven’t had an official term for what I have, since I got disillusioned with the dermatologist - it was super expensive and they didn’t really know anything about alopecia, that I didn’t and no “bed aide manner”. This was after a long line of specialist, that were similar  too...Lastly, I get how having a diagnosis/knowing something is relieving.

Alopecia areata except I can I have the opposite over. And haven’t condition term for it. lol So glad you use condition too, (Dislike the term disease with alopecia..) I concur that counting blessings, working on health and getting support and opening up can be helpful, as well as acceptance. Secondly, I do know personally can be challenging and empowering to meet others.

I live more south sound, may I ask if  would you be open to going more south? However sometimes am north, there are others and be happy to meet. Also even more north know someone.

Thirdly, feel free to reach out to me via private message if you want and anytime.Thanks and wish you a great week too. hugs!

Comment by Bon on February 9, 2020 at 1:52pm

P.S. I don't have Facebook.

Comment by Bon on February 9, 2020 at 1:51pm

Hi Lea,

I am learning my way on this website trying to connect with your group. I live in Everett.  Last week I was diagnosed with Lichen Planopiliris.  A rare form of scarring hairless/alopecia. The photo was taken in 2017 I don't have a more recent one but will upload one ASAP.  I would very much appreciate a meet up of some kind so I can connect and learn how best not cope but accept and live with this condition.  Currently, I am opening up to my friends.  I am blessed in many ways.  Super healthy, lots of close friends, belong to AA and have an excellent Naturopath who has put me on NDL and a topical steroid, the latter for two weeks to calm the inflammation.  At least I know what's going on and can stop the testing and doc appointments.  Please let me hear from you? Thanks and create a great day for yourself and those around you, Lea.

Comment by leah on January 7, 2020 at 1:03pm

Happy 2020 and hi all ~

Wanted to share some happenings and groups:

1) From the ASG they will be live streaming via Facebook, a documentary. Please share (i have cameo in it too)

JAN11

“Harmony” Alopecia Stories Sat 12:00 PM PST ·

B) They have in person meet;

FEB1

Alopecia Support Group Meeting Sat 2:00 PM PST

Luther's Table Renton

https://www.facebook.com/pg/alopeciasupportgroup/events/?ref=page_i...

2) NAAF created a closed facebook group for people in the NW to connect and asked all to drop line where they live. If like to help others connect with those that are close to etc. .  https://www.facebook.com/groups/northwestwaalopecians/?ref=share  

Please check out and share !

And I will share more connections with Alopecians etc in the near future.. 

Wishing all healthy happy new year,

Lea

#ALOPECIASUPPORT #ALOPECIASUPPORTGROUP 

Comment by leah on May 15, 2019 at 11:51pm

Yes, Deeann thanks. Maybe if people are interested in meeting up drop a line here.

Comment by Deeann on May 14, 2019 at 12:10am

Thank you for posting Lea. Looking forward to seeing you at NAAF, and to meeting others in this group. 

Comment by leah on May 13, 2019 at 11:35pm

Hi again all, am getting excited NAAF conference is coming here! Also that the fab Deeann is going to be the keynote! https://www.naaf.org/programs/annual-alopecia-areata-conference Check out her wonderful coffee table style book “Head-On Stories of Alopecia” https://www.headonpublishing.com/

https://conference.naaf.org/2019

https://www.youtube.com/watch?time_continue=5&v=D6kHj2YHBxs

Comment by leah on March 24, 2019 at 12:48pm

Great to see you and all Shar

Comment by leah on March 24, 2019 at 12:48pm

Thanks Jeffrey!

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