Comment

Comment by Mary on September 16, 2009 at 7:04pm

Welcome, Julia! It's a great group.

Comment by Monica LUPUS MATTERS Ellis on August 26, 2009 at 7:12am

He ladies am so glad that you all are having great vacations and taking the opportunity to make people aware of alpoecia,thats exactly what i do when people ask me about the spots on my face,i dont get offended (ANYMORE) i just give them all of the info about Lupus that i can. You ladies stay blessed and have a great WEDNSDAY!!!! :):):)

Comment by Carol Solis on August 25, 2009 at 4:43pm

And dont get me wrong I have cried like a baby many times,,but those times are few and far between these days.

Comment by Carol Solis on August 25, 2009 at 4:33pm

and having support systems in your life- friends, lovers, this group makes it seem a cake walk at times

Comment by Mary on August 25, 2009 at 4:19pm

Forgetting about it has been a huge part of it for me. I've found that if I just go about my life and act like there's nothing at all unusual about me, other people seem to react the same way. Conversely, early on when I was extremely self-conscious about how my wig looked, or about being bald, that was reflected in my face and posture - and people seemed to pick up on it. Sure, I'm almost always aware if people stare or look twice, but it just rolls off. Confidence is everything, and it gets easier with time.

Comment by Carol Solis on August 25, 2009 at 4:13pm

Just realized you are not back reread,,you are still in Hawaii, still Aloha

Comment by Carol Solis on August 25, 2009 at 4:11pm

It may be just me but the more I am out there it seems the less people even look, or It might be that I have stopped looking for peoples reaction which I feel is healthy, I have become very comfortable with the look and forget about it alot

Comment by Mary on August 25, 2009 at 4:08pm

That's right, Carol. It's all about educating and raising awareness. Every person who sees one of us bald in public and hears about AA, knows that the next bald woman they see might NOT have cancer. And, as I've said in connection with the NBO, people will only stop doing double takes at bald women when there are more of us out there.

Comment by Carol Solis on August 25, 2009 at 4:05pm

Oh yeah welcome back .. aloha

Comment by Carol Solis on August 25, 2009 at 4:05pm

Mary I got the same comments regarding cancer they were doing a charity walk on board for breast cancer,so It was assumed I was part of that,,I explained to some women, and they were intrigued about the alopecia thing. so I guess we educate in our being bald out there ehhhh

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